What a good post you sent. You are such a good person. That is what I have found on NT also. The best possible people under some of the worst circumstances. Thank you for telling me about your condition. I imagin you do know alot about neruology. You can't live with something so serious and not be educated about it. I am glad you are involved with NT and BT. I have heard of the other one also as a good site for neruological problems. Today I noticed that on NT we got a responce from another professional. I love it when doctors come to this site, and offer their advice, and encouragement. We need more of them to interact with us as "real" people, and not just another patient.
I was blessed to have some really good doctors in my corner. However my pain specialist is not allowing me yet to go up on my medications. My big toe joint has disolved and I am walking bone on bone until I can get the joint replaced. I have to heal from this mouth surgery before I engage in another major surgery. My mouth is slightly better today, the swelling is slightly less, all good. Now if the pain would just subside a bit, I could smile again.

It sounds from your post, that you have had to deal with epelepsy for a long time. I do hope that your doctors are fantastic to you, and give you all the help you need to live your life with good quality. things in the brain are so very scarry. I am friends with another on this site who has an inoperable brain aneurysm. I reach out to him too. He is so very brave with what he has had to endure.
I try to come back here alot, it reminds me that my own problems and pain are nothing compared to what others must endure. It puts my own pain into perspective. People need people, that is what I have found out. I am glad to know you too Sue. Thanks again for sharing with me what your physical condition is. No health problem is easy, but with friends, it does get better. ginnie

One of the many things that as me going, since having epilepsy, is I am always wanting to be with others of handy-caps to listen and assist them with what I can. In life I look at a great number of people on earth that I feel I cannot live with their's and I can live with mine. I to was 10 when I developed epilepsy so I have learned to live with it. At lease I can see, talk, hear and many other things.

May you all have a wonderful week-end. My thoughts and prayers are with you all.

Darlene

Haven't had any full-blown seizures, but, I do have auras and they
suck!!!

Phyllis

Hi Phyllis,

You might want to try and stop your auras by taking a cold washcloth and putting it on your face and the back of your neck 3 times a day. I did this in a medical study a couple of yrs. ago and they found out that a person body temp. is higher before a sz. and the heat triggers sz.
Another thing you can try is to tighten your muscles the moment you feel an aura sz. start and make your hands into tight fists. My neuro I had back in the 1970's taught me to do this and it stopped many aura sz. from going into a full blown absence or complex partial sz. Here's wishing You well and May God Bless You!

Sue