Epilepsy For support and discussion about Epilepsy and Seizure Disorders.

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Old 02-04-2012, 05:45 PM #1
countrymom8 countrymom8 is offline
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Thank you so much. Little by little I'm learning. I guess I just don't quite believe I'm having them. I see my neurosurgeon soon and he is very direct and great about things so I'm looking forward to what he has to say. Just hearing me describe them he says that's what they are for sure. Can they be diagnosed like that, just clinically with no "proof" on testing?
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Old 02-05-2012, 10:35 AM #2
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Hi countrymom,

Everyone that I have spoken to that has epilepsy has had testing done to find out if they are having seizures. Sometimes none of the tests will show any problems and that's when the Drs. go into a detailed study on the person. My case was a wierd one I had to many cells on the right temporal lobe that didn't dissolve as I grew older and this in turn caused migraine headaches which lead to seizures for me when I was a kid. My Epileptologist who has been in the medical field since the 1960s' told me he had only seen 2other cases like mine.

If I may ask have you been having migraine headaches at all because often they will lead into seizures. Here's wishing you well and May God Bless You!

Sue
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Old 02-05-2012, 12:24 PM #3
countrymom8 countrymom8 is offline
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Yes, I have Migraines. Have had them for years. Hmmmmm.
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Old 02-05-2012, 03:15 PM #4
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Hi countrymom,

The next time you see your neurosurgeon or neurologist be sure to tell them that you have been having migraine headaches. When I was a kid 10 yrs. old I started having migraine headaches and then the seizures began. I'm not sure how but there's a connection between migraines and epilepsy.
You can also get info. from the Epilepsy Foundation of America if you live in the U.S. just call the following phone number 1-800-332-1000 they will send you info. in the mail for free and answer any questions you have. They may be able to tell you if you have a local Epilepsy Foundation or support group in your area also. Here's wishing you well and May God Bless You!

Sue
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Old 02-07-2012, 03:33 AM #5
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countrymom,

Hello and welcome, happy to see you have come to be with us, it a great place to be. As you can see we have a number and caring fellow members here, welcome to a supportive and relaxing place. Our shoulders are here for support in many ways. Looks as though Sue has been here to help you out. If I were you avoid bright lights flashing at you the tend to start a seizure. Also keep a notebook with you at all times righting down when you have one and your feeling after.

Again welcome, looking forward to seeing you around. My thoughts and prayers are with you.

Darlene
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Old 02-07-2012, 07:46 AM #6
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Thanks so much Darlene. I am learning...... Ahhhhhh!
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