It's been a few years since my epileptologist weaned me off phenobarbital, and six years since my LTL re-section!

However, my seizures have returned. I lose vision completely and hearing. As far as I know, that's as far as these seizures are going. What concerns me is that my seizures were exactly like this before my E was finally diagnosed and treated. So I am scared. I've had lots of negative side effects as well as medications that didn't fully control my sz's.

I'm afraid that I will lose my driver's license again. That would have a huge impact on my life with my daughters, whom my ex-hub has primary custody of. I must drive 30 miles to see them ~ no bus or cabs out here.

Feeling real scared,

Shez

Hi Shez,

I'm sorry to hear that your sz. have returned. Your Dr. needs to do an DNA test on you to find what AED's would work the best for you. Years ago I was on phenobarbital but it didn't work that good for me so I was put on mysoline (primidone) which is a little stronger and it breaks down into phenobarbital later on. This has helped control my sz. much better.
Keep a calendar and write down each time you have a seizure and what time it happened some of this could all be hormone related. I know when I was going through my change I had a lot of seizures and nothing could be done. My prayers are with you and May God Bess You!

Sue

Thanks for responding, Sue.

I forgot to mention that my epileptologist wants me to be hospitalized, for a VEEG lasting 3-5 days or so. 6/1 is the soonest I can get in. That's when the doctors will work towards figuring out what's happening and what the best course of treatment is. Until then, I just stay on this med at this dosage. I'll have to write down each sz and it's description.

I don't know if I should be not driving in the meantime. I did talk with my employer about my E, as well as the upcoming hospitalization. I luckily just reached the 90 day employment, and I will be going on leave of absence from work when I go into the hospital for testing.

I'll try to remember to ask the doctors about trying DNA testing, while I am in the hospital. Thanks for the tip.

Shez

Thanks for responding, Sue.

I forgot to mention that my epileptologist wants me to be hospitalized, for a VEEG lasting 3-5 days or so. 6/1 is the soonest I can get in. That's when the doctors will work towards figuring out what's happening and what the best course of treatment is. Until then, I just stay on this med at this dosage. I'll have to write down each sz and it's description.

I don't know if I should be not driving in the meantime. I did talk with my employer about my E, as well as the upcoming hospitalization. I luckily just reached the 90 day employment, and I will be going on leave of absence from work when I go into the hospital for testing.

I'll try to remember to ask the doctors about trying DNA testing, while I am in the hospital. Thanks for the tip.

Shez

shezbut,

Very sad to hear what has occurred with you. I can imagine having to stop driving, I have been given my license, so I can feel for you.

I agree with Sue. Hope you do OK with the VEEG. When I had mine I didn't have a spell, wish you better luck. My thanks and prayers are with you.

Darlene