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Old 12-31-2012, 07:25 AM #1
Porkette Porkette is offline
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Hi elusions,
Welcome to the forum! When I was a kids I started having migraine headaches and that in turn led to absence (petit mal) sz. and then 2 yrs. later I started having complex partial sz. also.
I'm no Dr. but I've had sz. for 40 yrs. now and what you are describing sounds like you are having complex partial and maybe absence sz. also.
When I start to have a complex partial sz. I will get a nervous feeling in my stomach, then I start to see colors flashing back and forth in my eyes, I'm still conscious during this time and then a couple seconds later I will blank out but I will sometimes wander around work or home and when the sz. is over I will find myself in a different room and I'm confused for a few seconds until I realize I've had a sz. My husband can tell when I have this type of sz. because I smack my lips during the sz. so if anyone is around you and this happens ask them if you wander around, smack your lips, or pull at your clothing this is all signs of a complex partial sz.
When I have an absence (petit mal) sz. I will just have a daydream look on my face for about 30 seconds at the most and that's all that happens.
I've had many e.e.g.'s done and it didn't show any problems and that's because the brain damage was to deep in my brain and the e.e.g. couldn't pick up any of the problems.
It wasn't until I had the e.e.g. with electrodes put directly on my brain that they found I had a scar on the right temporal lobe of my brain.
I have seen many neuros over the yrs. but my advice to you is to see an Epileptologist at an Epilepsy Center. I've gotten more help from an Epileptologist than any neuro I ever saw and these Drs. specialize in epilepsy so they know how to treat a person better.
I was on topamax just like you for a short time and I found it caused me to have more sz. that's when I started vimpat and that has stopped most of my complex partial sz. and I take vitamin B12 1000 mcg. once a day and that has also helped to reduce my sz.
Sorry for carrying on so long but I wanted to let you know that it sounds like you may be having complex partial sz. I hope I'm wrong and I wish you the best of luck. May God Bless You!

Sue
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Old 01-01-2013, 02:37 AM #2
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Darlene Darlene is offline
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Wink Nice to meet you!!

elusious,

It is great to have you come and be with us. You will fine a great number of dear friends to listen when you are in need of ears. Please, just let us know how we can help you out. You will find out we are supportive and relaxing place.

Sue has given you some wonderful advice. I feel you go see an Epileptologist, because they are better capable of reading test they will run on you. Also avoid bright flashing lights, like at a theater, it can cause a seizure.

Please keep us up to date on your situation. Again welcome, looking forward to seeing you around. My thoughts and prayers are with you.
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"Life without God is like an unsharpened pencil -- it has no point.
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Old 01-01-2013, 04:04 PM #3
tos8 tos8 is offline
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Yeah that sounds like a complex partial. I have had many where aparently I can get very nasty with whoever. Obvisly they know its not me because im not like that and im not my normal self. Ill end up in a diffrent rooms, ive eatn almost a complete meal and didnt know it until i got out of the sz. and looked down and saw there was food in front of me and it was almost gone (that was probley the weirdest one lol). Or ive had times when they have told me somthing or to do somthing and I dont remember it. I can hold conversations while having a complex partial, but there usally not a normal one and my speech is slurred. After any of it im usally confused for a minute and have to get myself together and then ill relise i had a seizure. Ill see colors or "things" i think befor they usally happen. But they come on quick and I cant react to it and if you dont know I have sz. then you dont know im having one, or if your not paying attention, because they dont last long enough. Ive had 4 eegs and only 1 showed that I was having them. Its VERY important you find a good dr!
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