Porkette,

I was wondering what your neurologist was like and how you ended up seeing a Neurosurgeon. Usually you need a referral for that and I know mine would probably laugh at the idea. Also, I haven't had a ton of grand mal seizures over the years, probably less than ten in about seven years or so (i can't really remember), though a previous neurologist diagnosed me with partial sz when I was a good bit younger which I hear can lead into grand mal seizures. I was on lamictal for those and depression and this new neurologist said that it probably stopped me from having a lot more grand mal seizures, but just wasn't doing the job completely so he added something on.

What kind of tests did they do to decide to take out part of your hippocampus? I went thru pre nursing so I'm familiar with its functions.... That must have been a pretty big decision to make that decision and for your doctor to think it was the best way to go. How often we're you seizing? Did meds not help?

I've never really thought about the time of year I had sz. I just had one in April, one in December I think, another in february maybe, one hiking in the mountains, and I honestly cant remember the other times. I had a ton of partials when I was younger (young teens or a little younger I guess is when they started).... But no one could ever catch them on an EEG.

I'm scared all the time now bc I don't think it's simply epilepsy and that tacking on another pill will be the fix. And most everyone on this site probably knows insurance companies pretty much stay away from us; I'm a little lost.

Any more thoughts? Anyone???