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Old 10-29-2013, 03:20 PM #9
tos8 tos8 is offline
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Join Date: Sep 2009
Posts: 286
10 yr Member
tos8 tos8 is offline
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Join Date: Sep 2009
Posts: 286
10 yr Member
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I do see an epileptologist, hes also a neuro. But hes a ped dr because that's who I had to see while I was in my teens, he referred me to an adult epileptologist, and I know she will do better with treating me since im now an adult in my 20s and I think she will do a better job at trying to really pinpoint where my seizures are coming from instead of just throwing AED's at me and do more testing then what my current neuro has done, some of it is my fault because I refused a VEEG at a time that I knew it wasn't going to pick up anything after they loaded me with medication, but im now more open to having one done along with other testing, but it takes 3-6 months to get in to see her and I don't have the time to wait right now for my meds. I can atleast make the apt to see her while I get my meds figured out with my current ped neuro. I go to Hopkins, so it is a university of course, but politics aren't always so great there. But its the only big university around us that treats epilepsy paitents.


Quote:
Originally Posted by Porkette View Post
Hi tos8,

You might want to consider seeing an Epileptologist (Dr. specializing in epilepsy) instead of a neuro. You can find these Drs. at large hospitals or at University Hospitals. I saw many neuros over the yrs. but I got the most help from the Epileptologist who knows how to treat epilepsy with the least amount of AED's not to mention he/she will find the cause of a persons epilepsy and if the person wants to they can have surgery done to stop the sz. or reduce them like I had done. You will need to have your family Dr. refer you to an Epileptologist if you decide to go that route. I wish you only the best of luck and May God Bless You!

Sue

P.S. stay out of the cookie jar : )
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