[tos8]

I have been told multiple times that I get really nasty and its a complete personality shift when im in the middle of a complex partial. Ill usally yell at the person that trys and talks to me. And it throws everybody off when I have them if you don't know me because they don't understand how im walking and "talking" if im having a seizure. Well a couple of weeks ago I had a complex partial and the nurse that cares for my little brother was the one who was trying to figure out what was wrong with me because I wasn't making any sense when talking to her and then she put her hand on me because I wasn't steady when I was walking and that time I apparently looked back at her and yelled at her to not touch me and that I would hit her and she backed off then. That was the first time I had threatened to hit somebody. I guess it has to be where ever the seizure is locating to that's causing that aggressiveness because its just odd! Once the sz. was over that was it, but I didn't remember saying any of that. I know I need my meds switched I just haven't gone to get my levels checked. But I don't know what im going to do to prevent that behavior during a sz. when I have no controle over it.

[Porkette]

Hi tos8,

If I may ask what AED's are you taking? I know Keppra gave me a nasty temper when I was on the drug and I couldn't stand it so I went off it after 1 month.
It sounds like the right temporal lobe and your frontal lobe may be the areas of your brain that are triggering sz. the right temporal lobe shows a lot of emotion while the frontal lobe controls a persons behavior.

I find it interesting how you are able to speak to others during your sz. when I have my cp sz. often I'm not able to speak but I do wander around.
If you haven't tried it yet start taking vitamin B12 once a day to calm the nerves and this may help your cp sz. also. I started taking vimpat and since I went on that drug I've only had 1 cp sz. this yr.
Here's wishing you only the best and May God Bless You!
Sue

[tos8]

Well I stopped the keppra back in the summer because I also couldn't stand it. And I was on trileptle and Depakote. But the trileptle was making me toxic and so I weaned myself off of that. I told my dr I wanted to switch meds but he wouldn't listen to me. So my sz. have been more frequent because im only on Depakote. And yes ive been told I can talk, not all of the time, but when I do talk its very slurred and none of it makes sense, Besides when I said don't touch me or ill hit you. Its usually simple words if they do make sense, like "shut up" "quiet", its never been anything more then that.

Originally Posted by Porkette

Hi tos8,

If I may ask what AED's are you taking? I know Keppra gave me a nasty temper when I was on the drug and I couldn't stand it so I went off it after 1 month.
It sounds like the right temporal lobe and your frontal lobe may be the areas of your brain that are triggering sz. the right temporal lobe shows a lot of emotion while the frontal lobe controls a persons behavior.

I find it interesting how you are able to speak to others during your sz. when I have my cp sz. often I'm not able to speak but I do wander around.
If you haven't tried it yet start taking vitamin B12 once a day to calm the nerves and this may help your cp sz. also. I started taking vimpat and since I went on that drug I've only had 1 cp sz. this yr.
Here's wishing you only the best and May God Bless You!
Sue

[Porkette]

Hi tos8,

I've been on both trileptal and Depakote and the Depakote worked great for me along with taking mysoline (primidone) the only thing I had to watch was the blood platlet level and then that got so low plus I got anorexia from the Depakote so I had to go off the drug. Trileptal is just like tegretol and I understand what you mean by toxic because I had that problem a lot of the time while on trileptal. I was told not to eat grapefruit or drink grapefruit juice because the enzymes in the fruit could mess up the trileptal and when I had to take antibiotics for a bad cold forget it I ended up with the trileptal becoming toxic to the point where I couldn't even stand up by myself.
If you haven't tried it yet you might want to give Vimpat a try like I mentioned to you before it is really working well for me stopping my absence and complex partial sz. I take the vimpat with Diamox and mysoline twice a day. Here's wishing you well and May God Bless You!
Sue

[tos8]

I have been having trouble eating and have lost almost 20lbs and not a healthy 20lbs and we haven't been able to figure out why. For some reason my body just stopped tolerating my AED's. I thought I was doing fine on the Depakote, now that weight loss makes sense. I was even fine on the trileptal for a long time until one day it just made me feel so toxic. And I know the feeling because when I was on tegretol that made me toxic and I had to stop the med. Ive been in this combo for almost 2yrs now. And yes vimpat was gonna be our next drug to try. Time to make an apt again!

Originally Posted by Porkette

Hi tos8,

I've been on both trileptal and Depakote and the Depakote worked great for me along with taking mysoline (primidone) the only thing I had to watch was the blood platlet level and then that got so low plus I got anorexia from the Depakote so I had to go off the drug. Trileptal is just like tegretol and I understand what you mean by toxic because I had that problem a lot of the time while on trileptal. I was told not to eat grapefruit or drink grapefruit juice because the enzymes in the fruit could mess up the trileptal and when I had to take antibiotics for a bad cold forget it I ended up with the trileptal becoming toxic to the point where I couldn't even stand up by myself.
If you haven't tried it yet you might want to give Vimpat a try like I mentioned to you before it is really working well for me stopping my absence and complex partial sz. I take the vimpat with Diamox and mysoline twice a day. Here's wishing you well and May God Bless You!
Sue

[Porkette]

Hi tos8,

I'm sorry to hear that you have been having a hard time on different AED's (sz. meds) I've had the same problems as you have. I will be fine for awhile on a AED then everything goes down hill and the sz. start up again for me. I will say that I have found that taking the older AED's have helped me much more than some of the newer ones. Right now I'm on Diamox, Vimpat and Mysoline. I've been on mysoline for at least 30 yrs. and Diamox for over 20 yrs. the vimpat I've been on for 3 yrs. this March and I've only had 2 complex partial sz. and a lot less absence sz.

When I was on the brand name of Depakote which is Depakene I lost a lot of weight and that's when I found out that the drug can cause anorexia where a person will either gain or lose weight. I didn't have much of an appetiete
while on the Depakene all I ever wanted to do is eat junk food like potato chips with dip, pepperoni slices, and popcorn. I still would eat at least 2 meal a day then junk food in the evening. I found out the drug would burn off calories on some people no matter how much food they ate when other people gained the weight while on the drug it all depended on the person body chemistry. I wish you only the best of luck if you try the vimpat I found that if I took to high of a dosage it would cause me to have more sz. so I went from 200 mg. a day to 150 mg. a day and now I'm doing much better.
Here's wishing you only the best and May God Bless You!

Sue

[tos8]

Thanks Sue! We are going to go get my levels drawn tomorrow and then call my old nuero because I was supposed to switch to another nuero but I don't have that time to wait right now for an apt that will take 2-6 months to get into. Hopefully he is still willing to take me for the time being and we can figure out what meds will be the next step.

Ps.. I also only eat junky type food its the only type of food im willing to eat right now and only eat once a day, late at night like around 11pm. And even though im in my young 20s and I like to eat my junky food lol, I know its not good for me to only eat that and once a day.

[Porkette]

Hi tos8,

You might want to consider seeing an Epileptologist (Dr. specializing in epilepsy) instead of a neuro. You can find these Drs. at large hospitals or at University Hospitals. I saw many neuros over the yrs. but I got the most help from the Epileptologist who knows how to treat epilepsy with the least amount of AED's not to mention he/she will find the cause of a persons epilepsy and if the person wants to they can have surgery done to stop the sz. or reduce them like I had done. You will need to have your family Dr. refer you to an Epileptologist if you decide to go that route. I wish you only the best of luck and May God Bless You!

Sue

P.S. stay out of the cookie jar : )

[tos8]

I do see an epileptologist, hes also a neuro. But hes a ped dr because that's who I had to see while I was in my teens, he referred me to an adult epileptologist, and I know she will do better with treating me since im now an adult in my 20s and I think she will do a better job at trying to really pinpoint where my seizures are coming from instead of just throwing AED's at me and do more testing then what my current neuro has done, some of it is my fault because I refused a VEEG at a time that I knew it wasn't going to pick up anything after they loaded me with medication, but im now more open to having one done along with other testing, but it takes 3-6 months to get in to see her and I don't have the time to wait right now for my meds. I can atleast make the apt to see her while I get my meds figured out with my current ped neuro. I go to Hopkins, so it is a university of course, but politics aren't always so great there. But its the only big university around us that treats epilepsy paitents.

Originally Posted by Porkette

Hi tos8,

You might want to consider seeing an Epileptologist (Dr. specializing in epilepsy) instead of a neuro. You can find these Drs. at large hospitals or at University Hospitals. I saw many neuros over the yrs. but I got the most help from the Epileptologist who knows how to treat epilepsy with the least amount of AED's not to mention he/she will find the cause of a persons epilepsy and if the person wants to they can have surgery done to stop the sz. or reduce them like I had done. You will need to have your family Dr. refer you to an Epileptologist if you decide to go that route. I wish you only the best of luck and May God Bless You!

Sue

P.S. stay out of the cookie jar : )