Hi everyone, I'll introduce myself a bit first I'm a 21 year old uni student from Aus.

I post here because I don't want to rush to the doctor. I'm not one to take up unnecessary tests or things. But the thing that most concerns me is that I have been falling over head first. I have managed to prevent my head from hitting the ground 3 times now but I am afraid I will end up banging my head on the ground.

If I don't fall over completely, it will only be my head that drops, as if my neck just is giving out and forgetting that it has to hold up a head. This is really painful if my head drops down heavily.

Sometimes, my body will just go limp and I won't be responding to anything for couple of minutes as if I'm fading in and out of consciousness. I will have double vision and involuntary blinking/ staring, followed by 10 minutes of feeling just weird and an hour of not being quite with it (I've done things like put a boiling hot kettle in the fridge or walk around the house for no reason).


This has been going on for 2 months now, and each time it happens, I try to ignore it I go on as if it never happened.

I think I would benefit from a bit of help to understand that I probably shouldn't be ignoring this and I want to ask if you think this could be some kind of seizures? Or is this just me trying to make sense of it?
Thank you so much for your help and reading this.

Welcome to NeuroTalk:

This can be many things, so I think you should see a doctor.

1) low potassium
2) orthostatic hypotension or sudden low blood pressure when bending over or standing up suddenly
3) POTS (does your heart beat really fast when this happens?)
4) Low blood sugar spells
5) reactions to various drugs
6) some form of epilepsy

So really you should see a doctor and get evaluated IMO.
Good luck to you!

Please go to the doctor, ASAP. Delaying diagnosis and treatment could have very serious consequences.

In addition to whatever is already wrong, you don't want to fall, get whiplash and/or hit your head, and end up joining us in the TBI crowd.

Thanks for your replies. I didn't mention that I've had POTS for just over a year now. I have thought about that being a cause but I thought it would be strange for new symptoms to appear after a whole year?

Hi Sunshower,

I'm sorry to hear that you may be having sz. my advice to you is to see an Epileptologist at an Epilepsy Center these Drs. specialize in epilepsy and can give you a few tests to find out what's going on and then they will put you on sz. (seizure) med to control your possible sz. I have been taking vitamin B12 1000 mcg. once a day and that has done a great job reducing my sz. You may want to give it a try and you can buy it right over the counter. Stay away from anything that has NutraSweet in it because that can trigger sz. and cut back on the carbs and starch foods also which have been known to trigger sz. for many people.

I'm no Dr. but I've had epilepsy for 42 yrs. and it sounds like you are having either drop sz. or complex partial sz. With a drop sz. a person is fine and then their body just goes limp and the body falls after the sz. is over the person is confused and tired. With a complex partial sz. often a person will see colors in their eyes and sometimes hear words being said but it's all a hallucination and then the person will blank out and wander around but they don't realize it another thing they sometimes do is smack their lips or pull at their clothing during the sz. After the sz. is over they feel tired and confused often wanting t rest. I wish you the best of luck and May God Bless You!

Sue

Hi Sunshower,

I forgot to tell you when you get these feelings you mentioned be sure to write down on a calendar what time it happened along with a description of the possible sz. by doing this the Dr. may see a pattern in the sz. I always have sz. the first and 3rd week of the month, the Dr. feels it's hormone related. Also take note of what the weather is like when this happens to you because a lower pressure in the weather can sometimes trigger a sz. for a person but the 2 main things that trigger sz. are stress and lack of sleep.
Wishing you the Best of luck and May God Bless You!

Sue

Hi everyone; thanks for your responses.

I spent the night in the ED after a seizure that involved my left arm shaking. The staff seemed a bit annoyed with me. I was feeling really out of it (I took a long time to even remember who the prime minister is or what year it is), yet they told me I was never post ictal (?) One doctor told me it could be simple partial seizures, but the neurologist said it was unlikely and started calling them "turns" instead.

I was ordered to get more tests, even though I told them I don't want more tests if it's unnecessary, because they were basically telling me everything is fine and related to stress and probably not seizures.

Then he said, no I'm not saying everything is fine and not saying you're making this up.

I don't understand what's really going on. Lots of mixed messages being thrown around.

Hi Sunshower,

I'm sorry to hear that you may have had another sz. I wanted to let you know that Postical is a time when a person is border line of coming out of a sz. and it takes them awhile to remember what has happened.
This has happened often with me especially when I have a complex partial sz. once in awhile if the complex partial sz. lasts longer parts of my body will sometimes shake for a few seconds but I don't even realize it, my husband always tells me about it after the sz. is over.
The staff should not feel annoyed with you at all one thing you may want to do if you haven't already is start seeing an Epileptologist instead of a neurologist. An Epileptologist specializes in epilepsy and can find the cause of the sz. along with the correct meds a person needs a lot better than any neuro I've ever seen.
Stress and lack of sleep are the 2 main things that can trigger sz. for a person because it affects a persons hormones and when the hormones are changing that in turn can cause sz. for many people. If you haven't had an MRI or CT scan done yet you may want to get one done because these tests will show a lot of detail of what's going on in your brain and if there's any problems. I also found out I have more sz. when a low pressure in the weather is happening in my area and also I have what is called "seasonal seizures" which means I have more sz. at certain times of the yr. and that's because there's less light outside in the fall and winter compared to the spring and summer so this triggers sz. for me. While some people are just the opposite they have fewer sz. in the fall and winter compared to the spring and summer. Start taking vitamin B12 1000 mcg. once a day and see if that helps you. I wish you the best of luck and May God Bless You!

Sue