Hi CVallonio,


I'm so sorry to hear that the Dr. did diagnose you with epilepsy and that you won't be able to drive. I understand very well how you feel because I have never been able to drive in my entire life. I know it's hard to believe but there is a possibility that your sz. may stop and then after a certain time depending on where you live you can get your license back again. I have friends that were able to get their license again after they waited a certain amount of time and no longer had sz. If I may ask did your Dr. tell you what type of sz. you are having? I know many people stop having absence sz. and I also know a few people who have had tonic clonic (grand mal) sz. and then they all stopped after awhile and they are driving now. Have faith and don't let it get to you. I will be praying for you that all goes well and that your sz. will stop and that you will be able to get your license again. Wishing you only the best of luck and May God Bless You!

Sue

Sue,

Thank you so much for your support. The videotaped seizure was a grand mal. IVE only had 2. I haven't had another...and I pray that it stays that way. PA states that I must be seizure free for 6 months to get my license back. So the date I'm striving for is January 16th. Prayers to everyone here for good health. Thank you for all the info.

Good evening everyone.I've only been on this site a few times.My special needs daughter has had seizures her whole life.Today she had her 7th VNG put in.SHE IS ON DEPAKOTE AND Onfi.ativan and vallium.she's 34 with the IQ of a 3 yr.I WISH all of well.If I can help just yell.she's been on life support because of this.sge has been all but the newest meds and still having them all during the night and day.please all of you take care of your selves.

Welcome Truebeleiver.

Truebliever,

It is great to have you come and be with us. You will find a great number of dear friends to listen when you are in need of ears. Please let us know how we can help you out. You will find out we are supportive and relaxing place.

Please keep us up to date on your condition. Again welcome, looking forward to seeing you around. My thoughts and prayers are with you.

Darlene

Hi Truebliever,

Welcome to the forum! I've taken Depakote in the past and it worked well for me but after yrs. of taking the drug my body became immune to the drug.
If your daughter hasn't had a sleep study done yet you may want her to have one, I had one along with an e.e.g and e.k.g. all at the same time and my Dr. found that I was having seizures (sz.) in my sleep. This may be going on with your daughter also. I have found that keeping track of my sz. buy writing down what time of day or night I have any sz. along with the type of sz. has helped my Dr. a lot they have found a pattern in my sz. and they can now tell what days of the month I will have any sz. and it's a big help to the Dr. as well as me. Here's wishing you and your daughter only the best of luck and May God Bless the Both of You!

Sue

Hi CVallonio,

I'm sorry to hear about your recent diagnosis of epilepsy. I was just wondering, though, how they diagnosed this without EEG evidence? M-i-m

I don't know. When I saw the chief of neurology...she told me that more than one seizure, no history of injury to the head, no evidence of tumor, etc equals a diagnosis of epilepsy? All my paperwork also says diagnosis: epilepsy.
It would be great if not true.....and if it was just some sort of fluke?

Hi CVallonio,

As I've mentioned to you before get away from a neurologist and see an Epilelptologist because these Drs. specialize in epilepsy and can find out a lot easier what is causing the sz. Years ago they thought it was just scar tissue on my right temporal lobe but as time went by and testing got better they found out I had 2 bi lateral lesions very deep in my brain and not a single test showed it, they found out after I had my brain surgery done. If you see an Epileptologist you will be taking less meds, and they will take there time with you in their office answering any questions or concerns you have.
other than a brain tumor causing epilepsy these are a few more things that can cause epilepsy: a bad scare, lack of oxygen at birth, difficulities at birth, a bad blow to the head, drug & alcohol abuse, genetics, heart problems, and sometimes diabetes, or MS can lead to epilepsy.
I wish you only the best of luck and May God Bless You!

Sue

CVallonio

Report the Itching to your doctor immediately .Itching is a sign of a hypersensitivy . According to the literature on Keppra (Levetiracetam), it "should not be administered to patients who have previously exhibited hypersensitivity to levetiracetam OR any of the inactive ingredients ."


Linnie
Whose been at this from 63-67 years