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Old 12-04-2014, 07:13 PM #3
Porkette Porkette is offline
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Join Date: Aug 2006
Location: NY
Posts: 1,200
15 yr Member
Porkette Porkette is offline
Senior Member
 
Join Date: Aug 2006
Location: NY
Posts: 1,200
15 yr Member
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Hi Scared New Mom,

Welcome to the forum. Darlene gave you so great advice. Just like you I have had Deja Vu where I will be sitting in my own home but nothing looks familiar to me for a few seconds. When I spoke to my Epileptologist about this I was told this was a simple partial sz. and that the best way for this to stop was to try and concentrate when the deja vu is happening and repeat to yourself where you are and what's going on and it will bring you out of the sz. faster. Just like you I used to have sz. while taking a shower and I found out that it was the hot water hitting my head that was triggering the sz. and this usually always happened when my hormones were changing each month. As Darlene mentioned keep track of all your sz. write down what time they happened and the type of sz. you had also write down when you start and stop your monthly cycle. By doing this you can see if it's your hormones changing each month that's possibly triggering the sz. I always had sz. 1 week to 10 days before my cycle and then I would have 1 day after my cycle was over where I had sz.
Just like you I've had all the testing you have mentioned along with a spect and pet scan and my Dr. found only a scar on the right temporal lobe of my brain. Years later I had brain surgery done to reduce my sz. and this is when the Dr. found a lot more brain damage that not a single test showed and that's because the damage was way to deep in my brain for any of the tests to show. This could be what's going on with you. Once you see the neuro. ask them to do a fmri spect and pet scan on you so they can see more detail as to what's going on. Cut back on the caffeine also because that will reverse any sz. meds that you take. I wish you the best of luck and May God Bless You!

Sue
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Darlene (12-05-2014), scared new mom (12-05-2014)
 


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