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Old 03-09-2015, 09:19 AM #1
Kitt Kitt is offline
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Kitt Kitt is offline
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Old 03-13-2015, 07:20 AM #2
john1947 john1947 is offline
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john1947 john1947 is offline
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Hi,
I know the pain of a dotor brushig this ofas psych.MY last visit the doc who is a Movement disorder doc came right out and said it wasnt myoclonus but a psychgenic disordeor or tics..ne exam just opinion.No tests planned just a increase in my PD meds.Nice and easy for them but not so good for me.More people are made aware now as I come close to sudden falls the jerks come alot after I get a sharp pin where my sciatice pain was.Very unpredictable.
Hopefully I can find a competent do who wants to spend time on this.

Last Augest Ithink i might had a seizure.I was riding in a car.MY PD was acting up very stiff,I got out and rode for a while started having this awful noise in my head and became incoherent.I wasnt unconsious but close it lsted about a hour.None since till my jerks ame in october
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Old 04-11-2015, 08:45 PM #3
john1947 john1947 is offline
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Join Date: May 2011
Location: california
Posts: 90
10 yr Member
john1947 john1947 is offline
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Join Date: May 2011
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Default clonespan no good for pdhi i finaly went to the er .i got a video eeg and thoraic mri

hi went to ed aginst my ex doctors advice said they wouldnt do anything for me.i got the ed doc to keep me overnight ,two days and did eeg video,no seizures but i had good jerks throught out test and intense jerks with strobe light.mri was normal put me on cloneasan which made jerks worse during wearing off,forced out wanted a mri on lower back where sharp pain comes before jerks start,Came home very unstable need walker jerks the same before i went in.Now I find out clonespam is incompatable with mmy pd drugs.BP at hosptial was 100/56.Its about 130/80.
so im back homr and only have a inconculsive eeg ,jerks instabilty.Ir that the norm'head nurse said to her it looked like something was pricking my spine.
any suggestions almost sure not the steroid shot caused rge jerks in october
john
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Old 04-12-2015, 02:05 AM #4
john1947 john1947 is offline
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john1947 john1947 is offline
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Quote:
Originally Posted by john1947 View Post
hi went to ed aginst my ex doctors advice said they wouldnt do anything for me.i got the ed doc to keep me overnight ,two days and did eeg video,no seizures but i had good jerks throught out test and intense jerks with strobe light.mri was normal put me on cloneasan which made jerks worse during wearing off,forced out wanted a mri on lower back where sharp pain comes before jerks start,Came home very unstable need walker jerks the same before i went in.Now I find out clonespam is incompatable with mmy pd drugs.BP at hosptial was 100/56.Its about 130/80.
so im back homr and only have a inconculsive eeg ,jerks instabilty.Ir that the norm'head nurse said to her it looked like something was pricking my spine.
any suggestions almost sure not the steroid shot caused rge jerks in october
john
update my eeg points to spinal myoclonus.Also klonapin is not good to take if you have PD and use sinemet as it decreses the effectivness of the drug and also lowers bp no wonder i woke up with 100/56.glad i woke up hosptial must not be cross checking drugsthe bp drug losfisten alos has conflicts with pd drugs,have to find a safer hosptial,
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