Thank you for your time!

I do get strange bouts of tiredness, sometimes extreme sometimes not. I've never tried to pinpoint if they coincide with any other symptoms because I've never thought of seizures being anything more than a loss of complete consciousness and twitching.

I do have headaches quit a bit, some stronger than others, but again I never tried to pinpoint a reason internally. I've always figured they arose from stress or not enough caffeine.

I'm reading that deja vu and jaimas vu are part of seizures? I get intense feelings of dejavu during the day at least once a week. I've woken up at night to extreme jaimas vu; I won't recognize my room and wonder why I'm not at a distant past bedroom, I'll become incredibly terrified, I won't recognize who my husband is next to me, and then the understanding comes. The feeling of fear doesn't leave, but I'll slowly remember who I am again and where I am, and by that time I'm exhausted and pass out again. That was another reason my old therapist thought I was DID.

I did have a provoked seizure once, though the feelings were the same as when I used to 'pass out' as a kid. My mother's friend was helping me move and I asked her for some Tylenol because my back, which is bad, was hurting. When I went to get water, she grabbed them from her bag. I didn't look at them, just trusted her and took them. Unfortunately, she gave me two of her prescription tramadol. They can cause seizures.

It started with feeling very very sick. I ran to the bathroom. My head felt heavy, and the nausea grew to the point I was trying to make myself sick, just to make it stop. Then I started to feel weak and my vision started to black out. I got this sensation that I was dying, that I was doomed to death, and tried to run out of the bathroom. I went down. My husband picked me up and tried to bring me to the bed, but I was already convulsing. He threw me on the bed because I was so stiff. I didn't lose any awareness at all, and that made my fear worse. I remember repeating "I'm not supposed to be awake!" Over and over again.Then it faded. I forced myself to stay awake because I was so afraid to go to sleep, but I eventually went to bed.

I didn't go to the hospital because I didn't want to look like one of the local drug heads or get my mom's friend into trouble for an accident.

That's one of the reasons I assumed all seizures were mainly physical. I didn't think a headache was a sign (unless it was debilitating), or dejavu/jamaisvu, or weird stomach issues, or tingling, or my space outs, etc.

What are your space outs like, if anyone experiences those?

Hi LinaeveStar,

It sounds to me like you may be having deja vu or jamis vu sz. as you mentioned or it could be possible complex partial sz. which I have have had for many yrs.
When I have a complex partial sz. I will start seeing colors of the rainbow flashing back and forth in my eyes then I start to get a nervous feeling in my stomach during this time I am conscious and aware of what's going on, then the next thing that happens is I blank out and I sometimes will smack my lips and wander around not realizing what I am doing but if I am making dinner I will continue cooking and everything is fine I just don't remember. Then I come out of the sz. and I am confused and it takes me a couple of seconds to realize where I am and what has happened. Once in awhile I will get a headache but since I had surgery to reduce my sz. I seldom get headaches and I don't feel tired after the sz.
What you need to start doing is get a calendar and write down what time these possible sz. are happening along with a description of the sz. also write down when you start and stop your monthly cycle because hormones changing each month often will trigger sz. for women. If you have these possible sz. also take note what the weather is like because often a low pressure in the weather can trigger a sz. for many people do to the fact that the air is heavy and that in turn messes up the hormones which trigger sz. As I mentioned to you before have your family Dr. refer you to an Epileptologist and you will find out for sure what's going on and the cause of it.
The main things that can cause epilepsy are the following: sleep disorder, stress, lack of sleep, heart problems, lack of oxygen, difficulties at birth, a bad blow to the head, family genes, a bad scare, bright light and sounds, drug and alcohol abuse. If any of this has happened to you or you can relate to any of this, this may be triggering sz. for you. I wish you the best of luck and May God Bless You!

Sue

Hello and welcome, happy to see you have come to be with us, it a great place to be. As you can see we have a great number and caring fellow members here, where you have find a supportive and relaxing place. Have fun looking into the different forums. Our shoulders are here for support in many ways.

Please keep us up to date on your condition. Again welcome, looking forward to seeing you around. My thoughts and prayers are with you.

Darlene