Home Menu

Site Navigation



Epilepsy For support and discussion about Epilepsy and Seizure Disorders.


advertisement
NeuroTalk Support Groups > > >

Vns

Reply
Page 1 of 2 1 2
 
Thread Tools Display Modes
Old 08-28-2006, 10:30 AM #1
Rocking4Epilepsy's Avatar
Rocking4Epilepsy Rocking4Epilepsy is offline
----
  
Join Date: Aug 2006
Location: Davenport, Iowa
Posts: 468
15 yr Member
Rocking4Epilepsy Rocking4Epilepsy is offline
----
Rocking4Epilepsy's Avatar
 
Join Date: Aug 2006
Location: Davenport, Iowa
Posts: 468
15 yr Member
Default Vns
Do any of you have the VNS?

What is your thoughts on this?
Is it helping with sz control?
Rocking4Epilepsy is offline   Reply With QuoteReply With Quote
Old 08-29-2006, 07:15 AM #2
preciousmoments preciousmoments is offline
New Member
  
Join Date: Aug 2006
Posts: 5
15 yr Member
preciousmoments preciousmoments is offline
New Member
 
Join Date: Aug 2006
Posts: 5
15 yr Member
Default
why are you asking?

I think it's a wonderous device and has helped many people.
preciousmoments is offline   Reply With QuoteReply With Quote
Old 08-29-2006, 08:01 AM #3
Rocking4Epilepsy's Avatar
Rocking4Epilepsy Rocking4Epilepsy is offline
----
  
Join Date: Aug 2006
Location: Davenport, Iowa
Posts: 468
15 yr Member
Rocking4Epilepsy Rocking4Epilepsy is offline
----
Rocking4Epilepsy's Avatar
 
Join Date: Aug 2006
Location: Davenport, Iowa
Posts: 468
15 yr Member
Default
Quote:
Originally Posted by preciousmoments View Post
why are you asking?

I think it's a wonderous device and has helped many people.
I am curious how this device is helping people.
I have heard from many people the horror stories and wondered if there was any good side to this.
Rocking4Epilepsy is offline   Reply With QuoteReply With Quote
Old 08-29-2006, 08:30 AM #4
preciousmoments preciousmoments is offline
New Member
  
Join Date: Aug 2006
Posts: 5
15 yr Member
preciousmoments preciousmoments is offline
New Member
 
Join Date: Aug 2006
Posts: 5
15 yr Member
Default
from our experience...it's usually people who dont educate themselves BEFORE being implanted, who have the most problems. the ones who chose to try one drug before opting for the surgery.
preciousmoments is offline   Reply With QuoteReply With Quote
Old 08-29-2006, 09:17 AM #5
Rocking4Epilepsy's Avatar
Rocking4Epilepsy Rocking4Epilepsy is offline
----
  
Join Date: Aug 2006
Location: Davenport, Iowa
Posts: 468
15 yr Member
Rocking4Epilepsy Rocking4Epilepsy is offline
----
Rocking4Epilepsy's Avatar
 
Join Date: Aug 2006
Location: Davenport, Iowa
Posts: 468
15 yr Member
Default
Quote:
Originally Posted by preciousmoments View Post
from our experience...it's usually people who dont educate themselves BEFORE being implanted, who have the most problems. the ones who chose to try one drug before opting for the surgery.
You say in your experience?
Can I ask what that is?

Do you have the VNS or a loved one?
Is this an adult or a child?

Is it helping sz control?
How many meds did this person try before getting implant?
Rocking4Epilepsy is offline   Reply With QuoteReply With Quote
Old 08-29-2006, 10:32 AM #6
preciousmoments preciousmoments is offline
New Member
  
Join Date: Aug 2006
Posts: 5
15 yr Member
preciousmoments preciousmoments is offline
New Member
 
Join Date: Aug 2006
Posts: 5
15 yr Member
Default
my two children have it. My son would tell you in a heartbeat, he'd do it again...My DD doesnt verbalise too well. My son tried 8 different meds, my DD 13...
preciousmoments is offline   Reply With QuoteReply With Quote
Old 09-29-2006, 04:51 PM #7
traciboop's Avatar
traciboop traciboop is offline
Member
  
Join Date: Sep 2006
Location: USA
Posts: 439
15 yr Member
traciboop traciboop is offline
Member
traciboop's Avatar
 
Join Date: Sep 2006
Location: USA
Posts: 439
15 yr Member
Unhappy Yes Rocking4Epilepsy I To Have the VNS
Quote:
Originally Posted by Rocking4Epilepsy View Post
Do any of you have the VNS?

What is your thoughts on this?
Is it helping with sz control?
My VNS DID not work out as well has I had Planed I am sorry to say.I have had my VNS now for three years and no luck My voice still goes in and out every time it goes off and I still have sz.I am now looking at Brain Surgery for my sz control if my new pill dose not do the trick for me .But I wish well to all the others that chose the VNS
traciboop is offline   Reply With QuoteReply With Quote
Old 09-30-2006, 09:56 AM #8
lor's Avatar
lor lor is offline
Magnate
  
Join Date: Sep 2006
Location: Ohio
Posts: 2,808
15 yr Member
lor lor is offline
Magnate
lor's Avatar
 
Join Date: Sep 2006
Location: Ohio
Posts: 2,808
15 yr Member
Default
My VNS isn't perfect but it has helped some. It has made my sz's less severe & happening less often.

lor
lor is offline   Reply With QuoteReply With Quote
Old 09-30-2006, 10:17 AM #9
linniec linniec is offline
Junior Member
  
Join Date: Sep 2006
Location: Atlanta, GA
Posts: 13
15 yr Member
linniec linniec is offline
Junior Member
 
Join Date: Sep 2006
Location: Atlanta, GA
Posts: 13
15 yr Member
Default Vagus Nerve Stimulator -VNS and Epilepsy
Yes, In case he doesn't show up in BrainTalk today, Howdydave's experience and very thorough explantion with and of the Vagus Nerve Stimulator is right here on his site's link.
http://www.howdydave.com/vns.html
__________________
Linnie
Atlanta, Georgia
"Concentrate on what you can do,not on what you can't do."
linniec is offline   Reply With QuoteReply With Quote
Old 09-30-2006, 09:59 PM #10
howdydave's Avatar
howdydave howdydave is offline
Junior Member
  
Join Date: Sep 2006
Location: Rochester, New York, USA
Posts: 33
15 yr Member
howdydave howdydave is offline
Junior Member
howdydave's Avatar
 
Join Date: Sep 2006
Location: Rochester, New York, USA
Posts: 33
15 yr Member
Default
Howdy Linnie!

Gee... I was just gonna' say that too!

BTW: The site title is:
The VNS From A Patient's Point Of View

It can be directly accessed from a button on my site.

At this time I have better control than I ever had before.
In all honesty I must say that I'm not sure whether it's due
to the VNS, diagnosis & treatment for sleep apnea or a combination
of the two.
__________________
Dave ©¿©¬

.



VNS
SP / CP
Secondary Epileptogenesis

Ego sum quis ego sum quod ut est quicumque ego sum - Popeye
howdydave is offline   Reply With QuoteReply With Quote
Reply
Page 1 of 2 1 2

« Previous Thread | Next Thread »

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts
BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


All times are GMT -5. The time now is 10:54 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

All posts copyright their original authors.

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.

Always consult your doctor before trying anything you read here.

Home