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Old 08-28-2006, 10:30 AM #1
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Default Vns
Do any of you have the VNS?

What is your thoughts on this?
Is it helping with sz control?
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Old 08-29-2006, 07:15 AM #2
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why are you asking?

I think it's a wonderous device and has helped many people.
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Old 08-29-2006, 08:01 AM #3
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Quote:
Originally Posted by preciousmoments View Post
why are you asking?

I think it's a wonderous device and has helped many people.
I am curious how this device is helping people.
I have heard from many people the horror stories and wondered if there was any good side to this.
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Old 08-29-2006, 08:30 AM #4
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from our experience...it's usually people who dont educate themselves BEFORE being implanted, who have the most problems. the ones who chose to try one drug before opting for the surgery.
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Old 08-29-2006, 09:17 AM #5
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Originally Posted by preciousmoments View Post
from our experience...it's usually people who dont educate themselves BEFORE being implanted, who have the most problems. the ones who chose to try one drug before opting for the surgery.
You say in your experience?
Can I ask what that is?

Do you have the VNS or a loved one?
Is this an adult or a child?

Is it helping sz control?
How many meds did this person try before getting implant?
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Old 08-29-2006, 10:32 AM #6
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my two children have it. My son would tell you in a heartbeat, he'd do it again...My DD doesnt verbalise too well. My son tried 8 different meds, my DD 13...
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Old 09-29-2006, 04:51 PM #7
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Unhappy Yes Rocking4Epilepsy I To Have the VNS
Quote:
Originally Posted by Rocking4Epilepsy View Post
Do any of you have the VNS?

What is your thoughts on this?
Is it helping with sz control?
My VNS DID not work out as well has I had Planed I am sorry to say.I have had my VNS now for three years and no luck My voice still goes in and out every time it goes off and I still have sz.I am now looking at Brain Surgery for my sz control if my new pill dose not do the trick for me .But I wish well to all the others that chose the VNS
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Old 09-30-2006, 09:56 AM #8
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My VNS isn't perfect but it has helped some. It has made my sz's less severe & happening less often.

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Old 09-30-2006, 10:17 AM #9
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Default Vagus Nerve Stimulator -VNS and Epilepsy
Yes, In case he doesn't show up in BrainTalk today, Howdydave's experience and very thorough explantion with and of the Vagus Nerve Stimulator is right here on his site's link.
http://www.howdydave.com/vns.html
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Old 09-30-2006, 09:59 PM #10
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Howdy Linnie!

Gee... I was just gonna' say that too!

BTW: The site title is:
The VNS From A Patient's Point Of View

It can be directly accessed from a button on my site.

At this time I have better control than I ever had before.
In all honesty I must say that I'm not sure whether it's due
to the VNS, diagnosis & treatment for sleep apnea or a combination
of the two.
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Secondary Epileptogenesis

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