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| Epilepsy For support and discussion about Epilepsy and Seizure Disorders. |
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06-29-2007, 05:16 AM
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Hi e1  I am pretty new to E, so I mainly just read the posts, I rarely post. I've learned quite a bit from you all and your links, so thanks mucho!I have been on Phenytoin (Dilantin) since first being diagnosed. It has completely stopped all the full body floppy-croppy seizures, I only have the little "nod off" ones now, which I am fine with as I don't often drive nor do I work. However, I have other health issues, such as rsd/crpsII and aids. I am about to have to go back on aids meds, which I don't want to do but have NO choice. I got a call from the dr.s office yesterday. It turns out that I can't take Phenytoin and aids meds together, they have too many interactions. So, they are switching me to Lamictal. I have read all I can online about it. What I really need is advice from real folks who have taken this stuff, lol. If any of you have taken it, please see if you can answer. The most important thing for me to know is whether or not you have found Lamictal to cause any issues with nerves or muscles. I read that it can cause a hypersensitivity issue, which is my main concern. My rsd/crpsII is chronic, and my pain level is through the roof. I have been off the aids meds because they exacerbate the sx horribly. I am only willing to go back on them now, because it is a matter of life and death. But if the aids meds cause more sx, and then Lamictal does too, then there is just NO way I could handle it. The dr.s would have to come up with a different solution. So I truly need to know what you all think of Lamictal. If the majority of peeps who have tried it have the hypersensitivity side effect, then I can't afford to even try it. I don't want to waste months changing/adjusting a medicine that in the long run won't work for me. Thanks in advance for any help you can offer.
__________________
There are only two types of people in this world... those who bring you peace and those who don't. |
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