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Epilepsy For support and discussion about Epilepsy and Seizure Disorders. |
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#1 | ||
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Junior Member
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thanks for all the information, Im not sure what I should bring with us, for him to do....he is 12, I was wondering if Im allowed to bring snacks for him that he likes, etc.
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#2 | |||
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Senior Member
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Quote:
Here is a link to my VEEG information. Don't let it freak you out, though. Make sure you don't bring chewing gum though, they won't let him have it (chewing messes up the readings).
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#3 | |||
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Magnate
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kenausril, I had this done for 3 days and the worst thing was the boredom & trying to sleep at night with a light shining on me. I had a TV so that helped but take other things to do...maybe somehow you can hook up a laptop (or there's battery), some magazines he likes, crossword puzzles, paper & pencils, does he have an I-pod?. I'm sure theres other things to take but I can't think. Also take an eye mask or something, to put over eyes if he wants.
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#4 | |||
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Junior Member
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I'm an old woman so it sure won't be the same for your 12 year old
![]() My first stay before surgery in 2006 was 4 days and my last stay, this year, was 5 days. Both times I had my "usual" complex partial seizures after reducing meds. My husband refused their offer to spend night and day (no charge) with me. I took lots of books, embroidery, cross word puzzles, stuff like that. Food was awful but I did just fine. They tried to "force" me to have seizures so there were "tests" with the 'light shows', bikes and things like that. Time went pretty fast. |
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#5 | ||
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Junior Member
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Yes, they let you bring any food you want in. David's parents and I took turns bringing in italian food for him and Dunkin Donuts coffee.
David complained how bored he was. I brought him his iPod, magazines, DVD player and books. There was a TV in the room. He loved watching the Red Sox games at night but during the day, he was just bored to tears. He used his cell phone a lot to talk to friends. |
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#6 | |||
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Senior Member
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They did that to me, too. They tried to get me to get drunk! I wouldn't though. Even if they wanted/needed to see a seizure, I do not like more than one drink or I get deathly ill.
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#7 | ||
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Senior Member
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Hi,
When I had my e.e.g they did everything that everyone else has mentioned except how they made me drink diet soda because it caused me to have sz. and they also kept me awake for many hrs. to make me have a sz. I did word search puzzles and did a lot of writing while I had my veeg done. Other e. testing that I had done was an MRI, Ct scan, Pet scan, Spect scan and wada test. All of these tests show the area of the brain causing sz. along with what area of the brain is being used for most of a persons memory and speech. I found the wada test amazing, that's where they give a person a shot in the groin and half of the brain goes to sleep for awhile and then they have you read index cards, and look at pictures of the same person but 2 are the same and 1 is different. You have to pick out the picture that is different. It's amazing how I was able to do all of this with the right side of my brain asleep but when they put the left side to sleep. I couldn't speak even though I knew what the words were they wouldn't come out of my mouth it was like someone whose had a stroke and ends up with a speech problem. Here's wishing you and your son only the best. May God Bless You Both! Sue |
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#8 | ||
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Junior Member
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I just had one 2 months ago. Unfortunatly, I was in the noisy area, so do bring some headphones & great ear plugs. I would have left shortly had I not had them. Whining complainers I have no patients for. Had a DVD to kill time. Like it's been said, anything to keep from being bored to death.
Comfy clothes. Gowns are a joke, so pack his every day wear. As stated prior, eye patches come in handy. Aside from the crappy food, noise & that cord that kept being twisted it was not a big deal. |
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#9 | |||
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Junior Member
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flopper - you wore everyday wear? Wow.
I was REQUIRED to wear easy open-down-the-front PJs or hospital gowns. And while they were putting the stuff on my head a RN inserted a IV into my arm and a fresh one was inserted and taped down every morning "just in case I needed it" for some reason. I could not leave the bed for ANY reason at any time. When I needed to go to the bathroom I hit the button and waited for assistance. ![]() Every hospital is very different. |
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