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Epilepsy For support and discussion about Epilepsy and Seizure Disorders. |
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#11 | |||
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Junior Member
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flopper - you wore everyday wear? Wow.
I was REQUIRED to wear easy open-down-the-front PJs or hospital gowns. And while they were putting the stuff on my head a RN inserted a IV into my arm and a fresh one was inserted and taped down every morning "just in case I needed it" for some reason. I could not leave the bed for ANY reason at any time. When I needed to go to the bathroom I hit the button and waited for assistance. ![]() Every hospital is very different. |
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#12 | |||
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Member
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When I had my vEEG - I was permitted to bring my own
clothing as long as you can unbutton from the front. One of the hardest thing is trying to be FORCED to stay awake if your Epileptologist / Neurologist orders it. It's boring, boring, boring. However - they will NOT permit you out of bed if you have electrodes that have been inserted in your jaw or head. PERIOD. As for the cables - you will be free to roam about, but there is a way to walk around and keeping you from being twisted is to coil the cable first as if you were holding a microphone and walk with you - releasing as you go and vice versa. If there's nothing good on tv - you can always watch your Digital EEG - it can be pretty interesting watching the XLEvent. ![]()
__________________
Sharon . " Vujà Dé - The feeling you've never been in here before!" Daily Feedbag of Zonegran, Clonazepam, and Folic Acid |
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#13 | ||
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Junior Member
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Those folks failed to tell me anything to expect. You guys pointed me in the right direction. They didn't demand anything & I didn't complain, so we departed on good terms.
Now I wish I would have known about the cable trick though. |
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#14 | |||
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Junior Member
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![]() Same thing when I needed to brush my teeth or try to take a sponge bath (of course, a regular bath or shower is impossible with all the electrodes wired to your head) .... Someone helped me out of bed, walked me to the bathroom and left me alone (microphones listening to me but the cameras could no longer see me) but waited until they could escort me back to bed. It is NOT as bad as it sounds ...... all hospital people know what you're going through and are ready to help you, soothe you, laugh with you and just plain - be kind. I had one difficult partial complex and when I was waking up, having a hard time, TWO RNs were sitting with me on the bed hugging me (Hugging ME !!!) and being gentle. I still cry when I think of such kindness. |
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#15 | ||
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Junior Member
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I'm one of those people that want their space. I had the seizure on the first night & when the RN left to get the ativan & drugs the "baby- sitter" asked if the flop was done & how I felt. Of course, I said I was great. She bolted & so did I. Stumbled off to the bathroom & that was a chore.
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