Hi Tiger Lilly,
It's great to hear from you again. I'm sorry that you aren't able to have the surgery. Have you thought about the ketogenic diet I've been using that and it has help stop the tc sz. that I had last yr. My advice to you is to start seeing an epi at an Epilepsy Center. I found they were way ahead of any neuro I saw and were more updated on the correct medical procedures for the types of sz. I have. Here's wishing you well and May God Bless You!

Sue

It does suck that I won't be able to get rid of the last bit of my right temporal lobe which is were my seizures are coming from but, I'd rather be safe than sorry. Thanks for the info about the Epi and I'll be doing some research on that and I'll let you know how that goes. As for the diet I was told along time ago that the diet wouldn't help me at all. That was one of the reasons why I had my first brain surgery....there really wasn't any other route I could go at that time. I'll let you know how my research goes! Thanks Again

Hi Tiger Lilly,
I wish you the best of luck and I want you to know that my sz. are from the right temporal lobe also and just like you the surgeon felt it was to risky to remove all of the scar tissue on the rtl for fear of me going blind or being paralyzed. I'm checking into a new form of treatment they are calling RNS which is a device that sends stimulating singles to the brain before a sz. starts and it stops the sz. They are looking for people to go into different hospitals and give it a try and I might if I know my ins. co. will cover me. Here's wishing you well and May God Bless You!

Sue

Tiger,

Why I was asking about the VNS, is because I have one. I have had it for 4 years now. It took about a year to really start helping. A number of people don't think it helps where I see it has helped me. I am not controlled but the spells are farther apart and milder.

The only side-effect I ended up with is the hoarseness. Let me know if you would like to talk about this.

Darlene

Darlene, So far my seizures aren't bad like they used to be. The VNS is a possibility in the future if my seizures begin to get worse. I don't know if I'll even decide to do the VNS because I'm just sick of them poking around in my brain. I'm just gonna take a break for a bit.

Sue, It does suck that I couldn't have a fourth surgery but it's better to be safe than sorry. You let me know if your insurance co. will cover you and when or if your going to get the RNS done! *Hug*