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Epilepsy For support and discussion about Epilepsy and Seizure Disorders. |
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10-03-2006, 09:44 PM | #1 | |||
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Warning: This post will discuss my periods, feel free to flee if this subject offends or grosses you out!
--- Giving people time to run... --- I was wondering if any of you ladies or if any men who know of women who have seizures have requested a hysterectomy due to catamenial seizures (epilepsy). I've only recently started to experience these over the past several months, and while some people find they only have more frequent seizures - I have extremely painful ones the day before my period. They get worse every month. I made a list, similar to one you'd make for all of the reasons you love your partner - except this is the opposite. It is like: "The ten things I hate about my ovaries". I am a tough girl, and these turn me into a huge wuss. I find myself in the fetal position wondering if I am going to die or not, and I honestly cannot deal with these, and god forbid they get worse - there's no way I can handle it. Do any of you have these? What are yours like? Do yours hurt or do I just have bad luck? Also, did you happen to ask to have a hysterectomy due to these and did they allow it? I can't have children anymore, although I am only 29. I have never had a regular cycle, sometimes I have two per month sometimes I just have one lasting 7-10 days. Regardless, they all hurt and I was dealing with that just fine up until the seizures came with them. I have my limits, and these are bad enough I am stressing out two weeks before I assume I will start (it could be 1-3 weeks, again - it's not regular). I am afraid of my period now, I don't want it to come. Has anyone found a treatment for this? My seizure meds do nothing for me, they increased me by 1,000 mgs trying to calm these 'period seizures' but it's not helping. I posted in detail how the seizures feel in the post I made here about "My Story" if you're curious. I hate to be such a baby, but I keep thinking about them and I am now paranoid and scared to death of my own cycle. Do you think if I ask them to take out whatever produces these vile horomones they will laugh me out the door? Sorry for so many questions, I'm a spaz (take note of my avatar!). Thanks in advance for any help, and again - sorry for bringing up my period, I know some people hate to hear about that. Hugs, Ellie |
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