Just when I needed you most LOL

shattered_illusions · 09-01-2006, 01:37 PM

Hi guys and gals,
I wasn't posting too much on the forum latetly, because I am kind of in E limbo. Been off meds 2 yrs. now or just about.

Then a couple of weeks ago I had a series of events (jerking left side) that my neuro thinks are seizures. I have to follow up with epi. My EEG was normal, but last visit w/epi he said they may be too deep in the brain to register. I was dying to talk to y'all about it.

Chat helped, though. Plus Weds. I had another colonoscopy and this time the gastro said it was "very abnormal". I have an infection or Crohn's disease. So, that kind of took front place of my worrying about the E and possibly having to start meds again.

I have also, gotten the diagnoses of Narcolepsy and mild apnea since being here. I am awaiting a sleep study to set me up for c-pap. I want to know why all this stuff is happening to me!!!

hugs

annie · 09-01-2006, 03:31 PM

well, you certainly are having problems both top and bottom.

i have a neighbor with both seizures and sleep apnea. she has a machine she sleeps on, which has really reduced her seizures.

she hasn't mentioned anything about it improving her digestion, tho.

glad to see you back.

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