I'm so sorry... Watching your child go through any chronic illness is heartbreaking for any mother. My heart goes out to you.

I found a page that may be of help re info, although I didn't find it very encouraging: http://www.emedicine.com/radio/topic443.htm


Good luck to you, and kiss your precious girl for me.


LIZARD

Hi,
Welcome to the forum (((Hugs))) to you and your daughter. I've had absence (petit mal) and complex partial seizures for 35 yrs. now. I started having seizures when I was 10 yrs. old in 1993 and 1994 I had brain surgery done to help reduce my seizures.
Just like your daughter I've taken tegretol, neurontin, phenobarbital, and topamax only to find that not a single drug worked for me. I found out I was drug resistant. I also found out that neurontin caused status seizures for me and they now have lawsuits on them because they have found that the drug can cause seizures for people who never had a seizure in their life. Once I got off the neurontin the status seizures stopped.
My advice to you is to be sure to take your daughter to an Epilepsy Center to see an Epileptologist (Dr. specializing in epilepsy). I've seen many different neuro. over the yrs. but I got the best help seeing an Epileptologist.
You might want to look into having your daughter start the ketogenic diet. This diet is low in carbs and protein and high in fat. The diet has been around for many yrs. and it builds ketones up in a persons body to help reduce if not stop seizures.
I had the same problem as your daughter with the hippocampus. Over the yrs. I had so many seizures that the right hippocampus shrunk and became hard so when they did surgery on me they removed the right hippocampus.
It sounds like you are keeping record of your daughters seizures which is a smart thing to do. I write down what time I have any seizures on a calendar and I make a note if I'm sick with a cold or virus because I often have more seizures when I'm sick. Also some people are affected when a low pressure comes there way. I've also noticed that hormones changing has been the biggest think that causes seizures for me along with stress and lack of sleep. By keeping record of your daughters seizures her neuro. may be able to see a pattern as to what days of the month or what time of the day/night she is more likely to have any seizures. Here's wishing you and your daughter only the best and May God Bless You Both!

Sue