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Old 02-01-2008, 11:12 AM #1
aunt_laura aunt_laura is offline
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Join Date: Apr 2007
Posts: 8
15 yr Member
aunt_laura aunt_laura is offline
Junior Member
 
Join Date: Apr 2007
Posts: 8
15 yr Member
Heart Seizures, migraines, dizziness, ringing in ears

Hi! My husband has been having seizures for the past 20 plus years. They have never found out why he has them or has seen anything on the MRI's, CT's or any other testing they have done. Other than calicification on the brain. He is on Lamictal and Topomax for the seizures. He has been to so many neurologists and no one can help him and to be honest most of them don't even act that interested. The one he had been seeing for 2 1/2 years on his last visit announced that she didn't even know if he was having seizures, (after having him on anti seizure medicine for all these years.) I said well his seizures have been witnessed after surgery by other doctors, nurses and emt's have seen them along with people drawing blood at the lab. (I am not the only person that has seen them, many qualified people have too.

After that I took him to see an epiliptologist, we were very hopeful for this appt., because we felt if anyone, he could help us. For his first appt. the doctor came in late and was riflling though my husbands medical records as he was asking questions, and then didn't let us finish our answer, before going to another question, he spent a total of 10 minutes with us for a 1st time appt.

Needless to say, after 20 plus years, my husband is finally frustrated (which most people would have been much sooner). He has always been very cooperative about having whatever tests they want or seeing whatever doctor they want. He doesn't want to see anymore neurologists--he said he doesn't need too.
Does anyone out there know of a good neurologist in the Pittsburgh area, someone who is compassionate and knowledgeable?

The other neurologic conditions he has is severe migraines, with dizziness and ringing in his ears. It used to be he could lay down and when he woke the migraine was better, that is no longer the case, the migraines, ringing in the ears, and dizziness are much worse. Along with this he sometimes goes paralyzed on the right side. My husband is getting worse and I don't know what to do for him. He also has alot of other medical condition that are not neurologic related.

If anyone has any input at all I would really appreciate it, I hope I didn't ramble on too much.

Thank-you!
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