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Old 02-15-2011, 04:53 AM #1
untilthebell untilthebell is offline
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untilthebell untilthebell is offline
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My husband had a Cavernous Angioma removed from his right temporal lobe. The surgery was successful in removing the angioma, but he gets 3-4 Temp lobe seizures a week ir not more, he is wiped out and sick to his stomach for days!

I tried to get him on disability, but since he's 41 they are giving him issues. But its sad, he is loaded on medications, sleeps alot! They dont want him driving, he is also depressed on 150mg of Zoloft.

Any advice? We tried the diets mentioned. He has had seen many different docs, they changed up his meds many times, still sick with these seizres.

Is anybody here on SSDI because of these type Temp Lobe seizures?

Thanks!
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Old 02-15-2011, 10:11 PM #2
Rickey Rickey is offline
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Rickey Rickey is offline
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Quote:
Originally Posted by untilthebell View Post
My husband had a Cavernous Angioma removed from his right temporal lobe. The surgery was successful in removing the angioma, but he gets 3-4 Temp lobe seizures a week ir not more, he is wiped out and sick to his stomach for days!

I tried to get him on disability, but since he's 41 they are giving him issues. But its sad, he is loaded on medications, sleeps alot! They dont want him driving, he is also depressed on 150mg of Zoloft.

Any advice? We tried the diets mentioned. He has had seen many different docs, they changed up his meds many times, still sick with these seizres.

Is anybody here on SSDI because of these type Temp Lobe seizures?

Thanks!
I filed for my disability back several years ago for the seizures and they turned me down. They said they didn't think it was permanent and it wouldn't keep me from working. I have worked but I still have the seizures. Take a look at the SSA Blue Book and it will describe the rules governing disability with seizures. Maybe this can guide you in the right direction. Good Luck!
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Don't let life’s ups and downs get you down.
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Old 02-16-2011, 07:20 PM #3
Porkette Porkette is offline
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Hi Rickey,

I'm working in a new medical study where they use different color lights such as sky blue to help calms the nerves along with different scents such as vanilla and lavender to calm the nervous system. I also have tried listening to music every day before work and by doing all of these things I have noticed a decrease in my sz. You might want to give it a try if you want to. Thanks for sharing the SSA Blue Book I greatly appreciate all of your help and support. Here's wishing you well and May God Bless You!

Sue
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Old 02-16-2011, 08:04 PM #4
Rickey Rickey is offline
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Rickey Rickey is offline
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Hi Rickey,

I'm working in a new medical study where they use different color lights such as sky blue to help calms the nerves along with different scents such as vanilla and lavender to calm the nervous system. I also have tried listening to music every day before work and by doing all of these things I have noticed a decrease in my sz. You might want to give it a try if you want to. Thanks for sharing the SSA Blue Book I greatly appreciate all of your help and support. Here's wishing you well and May God Bless You!

Sue
Hi Sue,
I try to listen to classical music as often as I can, especially before going to bed. This seems to help. The keppra is causing some serious side effects such a rash on my leg that won't go away, it's causing me to get mad as a wet setting hen over the least little thing. I am going back to the neuro doctor next week to see what he wants to try next. He has got to do something, about one more screaming match with my wife over nothing will cause me to be a bachelor.

Thanks, Rickey
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Don't let life’s ups and downs get you down.
Get on one of the ups and hang on like a big dog!!!!
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