FAQ/Help |
Calendar |
Search |
Today's Posts |
|
Epilepsy For support and discussion about Epilepsy and Seizure Disorders. |
Reply |
|
Thread Tools | Display Modes |
10-24-2006, 12:50 PM | #1 | |||
|
||||
Senior Member
|
I go to my new Epileptologist tomorrow and I'm so nervous. After having more 'bad' doctors than good, I can't get my hopes up and in a way, I am prepared for a let down. I know that's such a bad way to look at things, too.
I think I am mostly nervous because I know she's my last hope. I keep getting moved around because no-one can 'fix' me or even control my seizures at all. I'd like to think they can offer something to repair or control everything in my temporal lobe, but I know that there isn't much hope for me regarding my parietal lobe - and that has really bummed me out. I looked at the success rate for non-tumoral parietal lobe surgery and it's around 20%. That's not a very good number for me. Not considering the risks are much higher, I don't want to end up with a severe impairment and/or blind when I only have a 20% risk of not having these parietal lobe seizures. It's like having to accept I'm stuck with them, and that stinks! I try to keep my hopes high about my RTL, but honestly, I can deal with those seizures. It's the ones that are hard to fix that I can't deal with because they hurt bad. I have everything I want to say written down. I have a strategy this time. I plan to ask her right away not to talk, ask her how much time I have (I've accepted I am a 10-20 minute time slot to all doctors). If I have 15 minutes, I should be ok. I can read everything I need to say in around 12 minutes which leaves me 3 minutes to ask her if she really has the time to treat me like a human and make a real true effort to help me. From what I heard, she's the best Epileptologist in this area. Wish me luck! |
|||
Reply With Quote |
10-24-2006, 01:49 PM | #2 | |||
|
||||
Senior Member
|
Best of luck to you and special hugs. It's so difficult to go to a new doctor. I had one tell me that he didn't want to see my notes...grrr. I hope that when we go to see Michael new Epi Doc that she is as good as I have heard.
A good doc will listen and not rush you. I wish you all the best I can! Julie
__________________
. |
|||
Reply With Quote |
10-24-2006, 01:54 PM | #3 | |||
|
||||
Co-Administrator
Community Support Team
|
Good luck Ellie-
I hate having to go over things multiple times - maybe I talk faster than they can write {no wonder their handwriting is so messy} putting it all on the table and asking her about getting "good" help from her or not is a good way to go. |
|||
Reply With Quote |
10-24-2006, 08:37 PM | #4 | |||
|
||||
Administrator
Community Support Team
|
Ellie
I am soooo glad you have written it all down. I do so hope that this time you get a genuinely good doc who LISTENS and who returns calls and ranks your feedback high!
__________________
~Chemar~ * . * . These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here. |
|||
Reply With Quote |
10-24-2006, 09:58 PM | #5 | |||
|
||||
Member
|
Ellie -- I'll be thinking about you tomorrow andwishing you the best.
I sure hope that this epi's first appointment with a patient is longer than that. |
|||
Reply With Quote |
10-25-2006, 12:05 AM | #6 | |||
|
||||
Legendary
|
Ellie,
Hope everything goes well for you. I can remember going to my neurologist for the first time. In all the years I have had epilepsy the doctors I have been sent to have been a flop, not doing any thing for me. The one I go to know has cared for me greatly and I have reduced my spells. Just keep your chin up and go in with I positive mind. You are in my prayers. Darlene |
|||
Reply With Quote |
10-25-2006, 12:26 AM | #7 | |||
|
||||
Senior Member
|
Thanks so much for the replies. I need to go to bed and I'm so anxious I can't sleep!
I promise I will rush home and give an update as soon as it's over! Wheee! |
|||
Reply With Quote |
10-25-2006, 12:37 AM | #8 | ||
|
|||
Yappiest Elder Member
|
((((ellie))))
don't forget to leave her a copy of your questions. put your name, phone number and email addy on it. boy was i glad i do this with all my folks dr visits! one of my mom's rx's didn't get written down when she saw her new dr. his double checking the note i left made sure she got a refill she desperatly needed. |
||
Reply With Quote |
10-25-2006, 12:54 PM | #9 | |||
|
||||
Administrator
Community Support Team
|
thinkin' of ya Ellie. Hope all goes well
__________________
~Chemar~ * . * . These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here. |
|||
Reply With Quote |
10-25-2006, 03:45 PM | #10 | ||
|
|||
Junior Member
|
i noticed that your appt with new doc was coming up. i hope it goes well and that you get some answers. ::
__________________
.:Ashley:. |
||
Reply With Quote |
Reply |
|
|
Similar Threads | ||||
Thread | Forum | |||
The Hospital, Doctor, And Therapist List | Children's Health | |||
the Doctor Patient relationship | Chronic Pain | |||
FAMILY DOCTOR: Fearing outcome of further testing | ALS |