Ok, if you can test this out and let me know if the images show I'd greatly appreciate it.

http://myveegexperience.blogspot.com/

yep. they all work.

Great, thanks. I added that link to my original post.

Ellie,

That's absolutely AWESOME!

My husband had the same thing done in May at Beth Israel here in Boston. They started weaning him off his meds (tegretol, lamictal and keppra) on the 7th and the 11th he had 6 horrific grand mal seizures.

He too had a sitter. Most days it was someone new. There was a young woman named Suzie that was terrific!

Honestly, it was the worst thing witnessing his seizures on the 11th. I'm still so shaken up by them. I am in therapy from it - call me dramatic, but it really scared me!

They were unable to pinpoint the start of his seizures. They said basically his brain exploded with the seizure instead of the seizure spreading over the brain.

On the 12th they introduced his meds back (slowly) and it was like night and day! They replaced his keppra with lyrica. So far, so good. He has gained weight on lyrica (side effect) but he's watching his carb intake (which is good anyways). My husband has never had a belly in his life and now he looks odd with a small belly.

Ellie thanks so much I am going to show this to my DH too and all the pics are working so it is very informative.

Catherine

My new neuro, whom I like alot but whose diagnosis of epilepsy I still don't believe, asked me if I'd consider having a VEEG. I said I wasn't sure. Then I saw Ellie's post, pics & blog. Now I'm sure: Hell will freeze over first before I do that.

Dear Ellie, i'm so sorry you had to go through that experiance. kind of made me feel sick thinking about it. by jingo's i pannicked about a silly MRI.
this info for anyone who has to go through this is fab! thanks for taking time to explaine it all so well , i agree whole heartedly this type of information can be of great value to patients, i just wish the med professionals could understand how important this syle of info is. but alas alot of them dont learn any bad side manner, ur description is Thorough, and people would never get so frieghtend of the next time they have to have something done.
i had an MRI last night and couldnt believe the changes they have made in 13 years. i could see through a little mirror , and they gave me music to listen to, 13 years ago was my first MRI and i was slightly allergic to the contrast. i didnt know it at the time and had a very bad time.with no meds at all, so last night i totaly freaked before going, and had stv during i realy cant believe you had a friend there for only 30 minutes , i most definatly would have some one with me the whole time.
your very brave. so hope they get all the info they need to help you as best they can. god bless darlen.
jen from Australia.
p.s maybe someone should right a book or Theses on careing for Patients in the real world.

Oh my goodness, no! I don't want my 'journal' to sway anyone from getting any diagnostic testing. However, I'd like to put out how it really goes so you can be better prepared. It's kind of like when the doctor is about to poke you with a needle and says, "You may feel pressure." No - it's not pressure, it's a needle stick.

Many in the medical care field feel the need to sugar coat things when it's really not necessary. It's worse when the experience is not what we were prepared for and we're left in discomfort and rather upset about the whole ordeal.

Even small things, like I should have been told to wear light cotton. I always wear fleece jammies because I'm normally anemic and just don't hold heat well. I didn't think I'd end up sweating badly or be on that exercise bike for 30 minutes. The fleece and sweat combo. caused me to break out in hives which then they gave me benadryl on the sleep deprivation night. That was un-fun!

Anyway, Heather, if you are unsure of your diagnosis this really is one of the better tests to get. But as mentioned, it is kind of a hit or miss. It seems like our brains know when they are being watched so they don't misbehave. Hehe.

Please don't let my Truth Tales sway you from getting your testing done, I'd honestly feel horrible. Just get the test done but think of my story and make sure you bring cotton pajamas, lots of entertainment providing gadgets, first aid cream, leave-in or spray conditioner (and a hat!), etc.

*hugs*

I agree with Ellie. I've also had a VEEG done. You don't have to bring just your pajamas. You can also bring daytime clothes to change into. The pictures that Ellie showed are just what happened to her. If you are having all kinds of seizures, it's good to have a VEEG done because this will show your neuro/epi a better idea at where your seizures are located at. If you are a candidate for brain surgery, this type of EEG will show more than the regular EEG at where the seizures are located at. This is just another beginning step for brain surgery if you go that way.

Becky