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Epilepsy For support and discussion about Epilepsy and Seizure Disorders. |
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#1 | ||
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Senior Member
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Hi Ellie,
How are you doing? All of this brings back many memories of when they did a veeg on me but instead of placing the electrodes on the top of my head they drilled 7 holes in my head 4 on the RTL and 3 on the LTL and they placed the electrodes directly on my brain. Just like you I had to drink diet soda eat potato chips, and peperoni because these were the things that triggered sz. for me. As far as using the restroom I was lucky I was able to get out of bed because I had a 25 ft. cable hooked up to me so I could walk to the restroom and get out of bed. Take my word my head was very sore for weeks from the surgeon drilling into my head. Here's wishing you well and May God Bless You! Sue |
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#2 | |||
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Senior Member
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I think the main complaint I have is if they are keeping things on people for a long duration, no matter how time consuming it is - they need to clean the areas and reapply. Many people have seen my pictures to know a general idea of before and afters. I took these pictures about 30 minutes ago once I finished my bath.
These are from the electrodes that they say 'do not touch your skin'. This image below is from the EKG monitor, when they removed it, it ripped the skin off of my back - literally. ![]() The next three images are from the left side of my face, one further back, one zoomed in more and one a close-up. The last picture was actually bleeding until I put ointment on it. Image 1 ![]() Image 2 ![]() Image 3 ![]() This is from behind my ear (both sides are the same) ![]() This is from on top of my head (I can't take pics well at this angle, hehe. It's hiding under my wet hair) ![]() I wanted to show these because parents may take their kids to have this done, and may hear them cry and say it hurts and there may be a nurse saying "It's just not comfy" or "It probably itches". Chances are, it's hurting because the skin is being rubbed off by the electrode. Or even if one of you has this done, if you feel like it's raw - it probably is, make them take it off and put more gooey stuff on. I have no clue what to do about my face, but I look like I have a serious skin disease now. You all have me in the flesh, but here I am - looking funky, and reporting news. I sure love you guys and gals. The pink spots are actually red, but my flash keeps turning them pink and if I don't use a flash you can't see. Bleh. PS: Never share these pictures!! ![]() I have around 20 spots like this all over my head, and taking a bath wasn't as pleasant as I had hoped it was. I'm sure you have all taken a bath or shower when you had sunburn at one point in your life. That's how it felt. Last edited by Ellie; 11-09-2006 at 07:49 PM. Reason: :o |
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#3 | |||
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Administrator
Community Support Team
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wow Ellie........I can sure see why you would be unhappy about the whole experience, but especially what they did that has hurt you........
![]() my hope is that by you being so vocal ![]() sure hope too that the results they got will be beneficial in your treatment and so at least have made the ordeal worthwhile! it must be sooooooooooooo good to be home eh! ![]()
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~Chemar~ * . * . These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here. |
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#4 | ||
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Yappiest Elder Member
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awww...sweety...they look like they hurt. vit e helps and so does aloe vera. neosporine will help fight infection.
i'm so happy you are home.
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#5 | |||
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Senior Member
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Honey I feel for you! I know that they hurt like the dickens as I've had several. Once at Texas Children's the technician told Michael that it didn't hurt that bad and to stop acting like a baby. I stopped it right there and demanded another technician. When he had his EEG a few weeks ago, the one on the side of the face was the worst. The tech didn't see that she had put the tape in his sideburn and when she ripped it off, it took off half his sideburn. Poor thing. His skin is very sensitive and it looked just like yours, especially on his face and chest.
There just has to be a better way of doing this. The scraping and cleaning is so painful. I hate just like you said above when the techs say it's just a little uncomfy...balderdash! You and I are adults and know that it does hurt like a *****. Biggest of gentle hugs!
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#6 | |||
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Senior Member
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Tip: Johnson & Johnson First Aid Cream (Wound Dressing)
I kid you not, my face looks 80% better from it. I applied it 5 times! It also helped out with a zit, too. Pick some up! It's greaseless, but still helps with the dryness. It's like a thick lotion and I've personally tested it for everyone. ![]() 5 Stars!! |
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