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| Epilepsy For support and discussion about Epilepsy and Seizure Disorders. |
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12-01-2008, 07:27 AM
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I had received emails from several individuals,
a Neurologist and couple Epileptologists all whom are writers / authors; requesting me to write again as I had done so years ago as a Journalist. While I've already begun to post some of these on some forums already - they've struck the hearts of many, and people want more. I've also come here - to share them with you ... Some while are from my own heart may also be of application to you; moreover while others, as heartbreaking as is, touches the very soul upon the others. I will continue on while I can, to write and post them as I go along. God bless and be blessed!
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Sharon . " Vujà Dé - The feeling you've never been in here before!" Daily Feedbag of Zonegran, Clonazepam, and Folic Acid |
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| "Thanks for this!" says: | Burntmarshmallow (12-01-2008), Darlene (12-02-2008) |
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12-01-2008, 07:29 AM
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TIME IS NOW
Sun began to set and moon began to rise, As I looked down upon my bed, I left a heavy sigh. Shall the nocturnal come with its own silent surprise? As I pondered, lying down to slumber, for suddenly without a cry; For within and without, no knowledge in store, It had struck without a warning, Whereas confused and dazed than before, That it has left me in the morning; Alas, the body is aching and sore! Seizure has struck, attacking me as before, Repetitiously, ruthlessly, leaving one at its mercy! Sadly one must endure with in its own reigns galore; For this Epilepsy should be considered a "Grand Larceny"! Medications here, Medications there, with titration to no end, Some are mind blowing, while others are God-send! Poked and prodded endlessly, blood levels must be checked, In and out, constant routine, never seem to end, Alas, Epilepsy, a nightmare that is certainly not blessed! Fears within, and fears without, how long must one endure? The quest to press on, never knowing when seizure impart; For such leaves one wide out in the open, victims for sure! Never knowing what lies in depth, for one can depart! It affects and effects one and all, a burdensome constraining; Lack of understanding and strain imposed, a burden to carry, It knows no boundaries, nor its victims, which are gaining, Like sands of the sea, victims are many, ages vary, Alas, Epilepsy, mean, cruel, and growth ever-abounding! Solitude, Peace, No more Seizures, those with Epilepsy cry out, Neuroscience and Scientist prevail with ongoing research, Moving quickly at rapid pace, scurrying all about, People with Epilepsy are dying, others injured and on the lurch; With hopes that one day, cure would come eliminating this thing, All working together as a team, efforts are slowly advancing. Progression have been made; many are left behind for a time being, Medications with side effects, the needs are expanding, Alas, Epilepsy, there is a time for action, for that time is NOW. Sharon - Nov. 24, 2008
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Sharon . " Vujà Dé - The feeling you've never been in here before!" Daily Feedbag of Zonegran, Clonazepam, and Folic Acid |
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12-01-2008, 07:30 AM
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Storms of Epilepsy
Rushing, mighty winds Splitting towering masts Over the rudder bends Nary have the waves blasted! Shattering the billows in its wings Mighty force it sustains Tossing back and forth, it brings 'Tis storm if ever refrains! Then comes the silver lining Shipwrecked completely on the shore Water logged and wearied binding Recuperate, rebuild, and sail once more! Epilepsy is so much similar Sadly, one must report! Repetitiously; all too familiar Enduring it all, without any resort! For true Admirals are they Without navigation, radars, or charts Endurance through it all night or day Knowing not what lies before them imparts! Sharon - Nov. 24, 2008
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Sharon . " Vujà Dé - The feeling you've never been in here before!" Daily Feedbag of Zonegran, Clonazepam, and Folic Acid |
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12-01-2008, 07:32 AM
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GIVE US A CHANCE
Traditionalist to mystified abstract I am a painter, and unique at that Posted at galleries, ribbons, trophies, surrounds Awards given, honors and newspaper an article abounds Looking around for my elite taste and more Desiring of my background which I won’t bore Learning of my Epilepsy, they do a backwards prance All I ask is give me a chance Rhythms echo down the halls Musicians put forth best that wails down the walls Singers belt out the lovely tunes While people dance to the music’s swoons Rushing to our bands, Managers with contracts in hand before Desiring of our background which we won’t bore Learning of our Epilepsy, they do a backwards prance All we ask is give us a chance Eloquent, Intelligent, Education choice supreme Corporations drool with utmost dream Phones ringing off the hook with contracts of deal Much I must ponder, for many are a steal However, the time has come; one elect inquires more Desiring of my background which I won’t bore Learning of my Epilepsy, they do a backwards prance All I ask is give me a chance I am just a Schoolchild as you can see I can do anything as everyone else if you please I can run, jump, draw, and play I can do anything whatever you say When they come across to my mommy for more Desiring of my background which I won’t bore Learning of my Epilepsy, they do a backwards prance All I ask is give me a chance I have played baseball since I was a young Always practiced the moment Spring has sprung Coaches and teammates are quite pleased with me For my average is sky high; as you can see All the while yet, the Scouts from Pros inquired for more Desiring of my background which I won’t bore Learning of my Epilepsy, they do a backwards prance All I ask is give me a chance Discrimination abounds so greatly all over It is the same story moreover Young and old affected within and without Leaving us fighting with a shout As everyone inquires within for more Desiring of our background which we won’t bore Learning of our Epilepsy, they do a backwards prance All we ask is give us a chance Sharon - Nov. 26, 2008
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Sharon . " Vujà Dé - The feeling you've never been in here before!" Daily Feedbag of Zonegran, Clonazepam, and Folic Acid |
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12-01-2008, 07:33 AM
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Rocking on AEDS (Humorous)
I'm rocking on anti-epileptic drugs which is a smash Tossing them all into the cocktail, it is a bash! Oh, baby, I am seeing a spider on the wall It is dancing in sheer delight with a fuzz ball! Oh, baby, I am on an AEDS cocktail spree I am downright staggering like a drunk you see! Your thoughts, don't you dare try to compare With everyone, everything, that is out there! Daytime, Nighttime; what is that? All around me, for I have lost track! Oh, baby, I am on an AEDS cocktail spree Am I awake or sleepy, I cannot perceive! Isn't this lovely my cognitive functioning Is all now one hundred percent malfunctioning! Normalcy; is that a reality? Alternatively, is that some type of malady? Oh, baby, I am on an AEDS cocktail spree The longing cost of being seizure-free! This is very asinine, come right now Hearing things, seeing things, and how! Titrations up and down, never liking this sound Never knowing where I will abound! Oh, baby, I am on an AEDS cocktail spree The side effects are hideous as you can see! For now, I witness myself in a déjà vu I am no 'psychic', nor a Ghost - "BOO!" Freaking out people is not what I desired Loved ones are astonished; and I, wired! Oh, baby, I am on an AEDS cocktail spree Anti-epileptic drugs do strange things, "Yes, Sir-ee!" Sharon - Nov. 26, 2008
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Sharon . " Vujà Dé - The feeling you've never been in here before!" Daily Feedbag of Zonegran, Clonazepam, and Folic Acid |
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12-01-2008, 07:36 AM
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Then... (In Tribute to those who lost their lives to SUDEP)
A cooing baby rests Nursing on his mother’s breasts Proud father goes on with his dreams Of his future son’s sports schemes While Grandparents stand in the midst Wallowing in ‘Spoiling Grandson’ list Months have grown by Son has no longer become shy Now talking and walking Then all of a sudden while sleeping Parents hear a scary cry, sounding eerie inside Rising from their sleep, rushing to his side Immediately the father makes a phone call Suddenly the Medics and Ambulance Tech are in the hall, Transported immediately to the Hospital THEN …. Exhausted, but excited, now fiancée is off the phone Glazing at her new rock, which she was stuck to her like Super Glue Laughing hard, was the fiancé who was in sheer delight For this entire dramatic event was just a pure sight For the “Future” In-Laws were already making plans Bickering how it all will come into plan For yet has there been a wedding date ever been set And ‘twas yet, to everyone’s amusement, the Bride is beset While the future Groom kissed his future Bride goodnight Not knowing that fate lied in sight While everyone headed to slumber His fiancée decided to lumber Overwhelmed with all the decisions of the wedding As soon as the sun rose the next morning Mother checked in; Medics called, transported to the Hospital THEN …. Proud Mama rooted and watched with a gleam As her daughter continued gaining points on the balance beam Gymnastics was always her forte, while in band played the flute While her seizures were fully controlled, she was wild and witty as a hoot Her Mama always demanded the best For her grade point averages excelled above the rest Universities expressed their interest with her in mind Scholarships everywhere in the mail, for graduation was not far behind Mama and daughter was quite a pair Everything between them they had to share Then one day something tragic happened which was unexplained “Mama, I don’t feel right”, daughter loudly proclaimed Mama rushed to her aid, and phoned the Doctor, “Help me” Office inquired what had happened, all they heard was “Seize” Mama hung up on them, phoned 9-1-1, and off they went to the Hospital THEN … Tears, flowing down, for this cannot be real Please, someone please, tell me that this is all surreal For we have just been told S U D E P has been unfold Taking our loved ones lives away So quickly, so suddenly; at loss for words that one can say This is so unfair, never having a chance at life Instead of happiness, now we must deal with strife We look at the casket, such sweet face abounds Tears, flowing down, we cannot stop the crying sounds Someone, please tell us cause of this tragedy? Someone, please tell us how to stop this malady? Epilepsy, is that what is was? Buried now with deepest sorrows Embracing of their memories, forever and all of our tomorrows Sharon - Nov. 30, 2008
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Sharon . " Vujà Dé - The feeling you've never been in here before!" Daily Feedbag of Zonegran, Clonazepam, and Folic Acid |
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| "Thanks for this!" says: | shezbut (02-10-2009) |
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