I was diagnosed with a partial complex seizure disorder in the mid 1980's and placed on Tegretol and Phenobarb....it was great, no more weakness in my right arm/leg as the day progressed etc. After about 5 years I weaned off the meds.

I've noticed over the last couple of years or so different auras such as terrible smells etc. and flashing lights that drive me nuts. I also will be talking to someone and less than a minute later pick up where I left off if I was talking or if they were, I'd "miss" what they had said in that intervening time.

Finally saw a neurologist who tried some trileptal (allergic). Finally put me on Carbatrol altho he was very unhappy about it as it's an older drug. I won't go into the problems with that when he tried to increase the dosage.

Tried a new neurologist who obtained an EEG and it was abnormal...sent me for an MRI to r/o medial temporal ischemia...I didn't have it which was just fine with me. I also had problems with Keppra and she wouldn't try lamictal as she's had patients who have had problems with it...so she started me on Lyrica and over 2 months it's up to 100mg twice daily. I don't like it. Oh, about a year ago finally got a Tegretol level which was fine. A year ago! No one thinks that's strange.

I'm tired...I do have sleep apnea..and use BiPAP...but lately have been having such weird vivid dreams that have never occurred before.

I get to see a neuro only about twice/year because my fairly large metro area has a dearth of neurologists and she works only twice/week....and now I was called and told my appointment that was scheduled on the 20th has been moved because she just won't be in that day. How nice...AND they try to make me feel guilty because "she's making time on her day off to see you."

I'm so tired I can't stand it.

Thanks for listening.