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Old 02-25-2009, 08:29 PM #1
sharron617 sharron617 is offline
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sharron617 sharron617 is offline
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Default new seizure control device currently under invastigation

Currently under investigation is a device used to control seizures called the neuro brain stimulator. It is programed to sense then stop a seizure. Wire leads target the sight where seizures originate by tuning into abnormal electrical activity. The device can identify a seizure and emit a low level input to stop a seizure. This sounds really good. Especially for those considering surgery that are not good candidates. Even better than the VNS because it does it automatically. Therefor it can be used with both types of seizures. Hopefully it will be successful.
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Old 02-26-2009, 07:20 PM #2
Porkette Porkette is offline
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Hi Sharron,
Welcome to the forum! If I'm not mistaken you're talking about the Deep Brain Stimulator (DBS) They have been out for a few yrs. and I looked into getting one. The DBS is not only used for epilepsy but it's used for MS, back pain, and Parkinson disease. The DBS is a device similar to a pace maker that is put into the right side of the upper chest attached to it are 2 wires and those wires are placed in the areas of the brain triggering seizures they then take the device and program it so it will send stimulating singles to the brain every 5 minutes or faster by doing this it stops the seizures and reduces the pain. The only bad thing about the DBS is that you have to have surgery done every 4-6 yrs. to change the batteries. I have a cousin who has a DBS for severe back pain but he played it smart and had the device put on the outside of his body so when it comes time to change the batteries it's no problem and he doesn't have to have surgery done. Here's wishing you well and May God Bless You!

Sue
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Old 03-21-2009, 02:56 PM #3
shawn33 shawn33 is offline
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shawn33 shawn33 is offline
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Default I've had the RNS for 2 years now

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Originally Posted by sharron617 View Post
Currently under investigation is a device used to control seizures called the neuro brain stimulator. It is programed to sense then stop a seizure. Wire leads target the sight where seizures originate by tuning into abnormal electrical activity. The device can identify a seizure and emit a low level input to stop a seizure. This sounds really good. Especially for those considering surgery that are not good candidates. Even better than the VNS because it does it automatically. Therefor it can be used with both types of seizures. Hopefully it will be successful.
Hi there Sharron,
It's called the Responsive NeuroStimulator (RNS). If you want to read more about it go to www.neuropace.com My RNS (Responsive NeuroStimulator) since 12-23-06. So far it's reduced my seizures some. Also the TOTAL confusion I go through after a seizure. In the past I couldn't remember anything at all when it came to the seizure. But now with the RNS, half the time I can remember the total confusion I go through thanks to the deep brain stimulation. I just hope that the correct programing will get my seizures under control. In the past I had the VNS, and for 11 years that didn't do a damn thing for me except put me through hell with the side effects. One thing that got me was that when I only had it for a year, it had already done 4,800 deep brain stimulations. So I ended up having to get a new battery for it already. If you have any questions about it, just let me know. I'll check in more frequently to see if you ask. or send me an email at shawn_wittman@att.net, that's also my chat ID for yahoo
Sincerely
shawn33

Last edited by shawn33; 03-21-2009 at 03:05 PM. Reason: add info
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Old 04-04-2009, 03:12 PM #4
shawn33 shawn33 is offline
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shawn33 shawn33 is offline
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Default hello sharron

I have the brain stimulator and it's true name is the Responsive NeuroStimulator (RNS). I've been in the research studdy since Christmas eve of 2006. As for me I have the petit mal seizures and after the staring spell I'm just TOTALLY confused. But I never remember a thing not even during the confusion. Being TOTALLY confused is just how my neuro, nd family and friends have told me that I've acted. But ever since the recent reprograming of the RNS. Now half the time I can totally remember the confusion I go through. If you want I can tell you what I was thinking during the confusion a few months ago, and a few last year. So it looks like if the doctor can get the right programing in to the computer chip. My seizures will be controlled, and mine are from severe blunt force trauma to the head in a war.

Sincerely
shawn33

Quote:
Originally Posted by sharron617 View Post
Currently under investigation is a device used to control seizures called the neuro brain stimulator. It is programed to sense then stop a seizure. Wire leads target the sight where seizures originate by tuning into abnormal electrical activity. The device can identify a seizure and emit a low level input to stop a seizure. This sounds really good. Especially for those considering surgery that are not good candidates. Even better than the VNS because it does it automatically. Therefor it can be used with both types of seizures. Hopefully it will be successful.
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