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| Epilepsy For support and discussion about Epilepsy and Seizure Disorders. |
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12-18-2006, 07:11 PM
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In Remembrance
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Update on the little boy who had the stem cell operation, as of today his MRI's improved, he is sz free, he is starting to talk again. His parents say he is more active every day and they are hoping he will be playing soon outside with the other children.
HE WAS FIRST DIAGNOSED WITH AUTUISM,THAN EPILEPSY , THAN BATTEN DISEASE. The family is home and they will return to OSHU for the regualr checkups. Hopefully each checkup will bring bring him closer to a healthy normal life . What a gift that stem cell operation for his family and for all hoping to be helped by stem cell operations Riva |
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12-20-2006, 04:42 AM
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New Member
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That's great to hear. Can you give more details on specifically how his MRI improved?
--Kasey |
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12-20-2006, 01:02 PM
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In Remembrance
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The articles states the post operative MRI"S looked at Daniels Brain,its a beautiful light light was filtering through where the cells are,Marcus Kerner
said. (Batten disease is a death sentence.Children with the illness can't make an enzyme that normally clears the brian of fatty substances,so the substances build up and grow posionous. Children lose their ability to see, speak ,think and move and develop seizures and die by their teens. Their is no cure.) Riva |
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03-16-2008, 05:07 PM
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Hello EveryBody
I have cb child and he has brain shant, he has movement problems and some mental problems, i wanna ask how stem cell operation can help and its precentage of success and where the best place i can make this operation thanks |
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| "Thanks for this!" says: | (Broken Wings) (02-03-2010) |
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03-16-2008, 06:51 PM
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Hi E Askar!!!
Welcome to Neurotalk!!! This appears to be an old thread so I'm not sure how much of a reply you might get. I wish I had an answer for your question... unfortunately I do not. You may want to go to the New Member Introductions Forum...and repost your question there. More people tend to look at that forum and may be able to provide you with some direction. (If you click on the Blue words it will take you to the New Member Forum) I truly wish you the best!  Abbie
__________________
My avatar pic is my beautiful niece Ashley! . Rest in Peace 3/8/90 ~~ 4/2/12
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| "Thanks for this!" says: | (Broken Wings) (02-03-2010), AfterMyNap (03-17-2008) |
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03-17-2008, 08:50 AM
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Wise Elder
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Hi, E_Askar!
 Welcome to NeuroTalk!
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—Cindy For every day I choose to play, I set aside a day to pay. —AMN "Sometimes plastic wrap just won't cling, no matter how much money you put in the meter." —From the Book of True Wizdom |
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| "Thanks for this!" says: | (Broken Wings) (02-03-2010) |
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03-17-2008, 03:50 PM
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Hi Riva,
Thanks for the update. I'm really happy to hear that the boy is doing much better with the stem cell surgery. Thanks for keep us posted. Take care and May God Bless You! Sue |
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03-17-2008, 07:15 PM
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Riva passed away Oct. 26, 2007 from an unattended grand mal seizure.
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. "If you are going through h e l l, keep going." (Sir Winston Churchill, 1874-1965) C'est la vie! Work like you don't need money, Love like you've never been hurt, And dance like no one's watching. |
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| "Thanks for this!" says: | (Broken Wings) (02-03-2010), Abbie (03-18-2008) |
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03-17-2008, 07:21 PM
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Our Beloved Riva is now playing
with the Angels as Birdy has posted ... from SUDEP. She is sorely missed ... (((( RIVA, WE LOVE YOU! ))))) 
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Sharon . " Vujà Dé - The feeling you've never been in here before!" Daily Feedbag of Zonegran, Clonazepam, and Folic Acid |
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| "Thanks for this!" says: | (Broken Wings) (02-03-2010), Abbie (03-18-2008) |
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03-20-2008, 08:10 AM
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Administrator
Community Support Team
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For those who may have missed the thread honoring Riva here it is
http://neurotalk.psychcentral.com/sh...ad.php?t=31020 I know she was dearly loved by many and she is missed very much. We added the "In Remembrance" below her name after her passing
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~Chemar~ * . * . These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here. |
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| "Thanks for this!" says: | (Broken Wings) (02-03-2010), southie (03-20-2008) |
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