That really does sound similar...

I have not been diagnosed with anything because none of my doctors believe me. I'll have to look into a doctor that specializes in epilepsy. I am not on any medicines to help with this situation and lucky me, I am allergic to an ingredient in diet soda and in many other things that are thought to trigger seizures. Thank you so much for your help!

Hi Ghost,
I'm glad to be of any help. I remember when I was your age and going through puberty it was the hardest time for me and I had many more seizures do to hormones changing a lot. If you can get in to see a neurologist or Epileptolgist have them do an e.e.g., MRI, CT scan, and some blood tests. If you use a cell phone you might want to cut back on using it even if your texting because it has been proven that cell phones can trigger seizures for people who have a nervous disorder do to the frequency your using. It also causes short term memory loss for people. My Epileptologist and Neurosurgeon told me to stay away from cell phones a few yrs. ago. Here's wishing you well and May God Bless You!

Sue

What is probaly the most frustrating part is that I've seen a neurologist and he was, for lack of a better word, rude. He didn't listen to what my symptoms were and said that the tonic-clonic seizure wasw normal for people. I was very unhappy with the visit and have not gone back but I'll look into a new one. I have had blood tests, an EEG, and an MRI but they all came back normal. I guess it means I need to find a GOOD neurologist, but that is proving to be harder than my mom and I had thought.

Thank you so much for all of your advice, it is nice to know that I'm not crazy with all of this.

Hi Ghost,
I'm sorry you've had a hard time with the neurologist, this has happened to me also where the neurologist didn't believe me at all that's when I turned him into Medical Conduct Board and found out he wasn't the best neurologist and he got in a lot of legal trouble with other people for Malpractice.
Take my word there have been many cases where a person will have all the testing done that you mentioned and it won't show any problems and that's because the damage on the brain is in to deep for any of these tests to pick up. I had to have a video e.e.g done and they had to drill 7 holes into my head and place the electrodes on my brain in order to find some of the scar tissue but it wasn't until I had my last surgey (ultra sound) to help reduce my seizures that my neurosurgeon found even more brain damage on the left hemisphere of my brain along with the frontal lobe of my brain. The Dr. was amazed that the tests didn't show any of these problems.
I hope you are able to find a good neurologist or Epileptologist. If you want to get info. you can call the Epilepsy Foundation of America at
1-800-EFA-1000
I wish you the best of luck and May God Bless You!

Sue

Thank you so much for all of your help!

I agree with Sue, see an epileptologist. It took me six long years to be correctly diagnosed with epilepsy (they kept telling me I was diabetic and having hypoglycemic reactions). I finally had a grand mal seizure when I was six months pregnant and somebody finally figured out that I'd been having complex and simple seizure's for years. All caused by what they thought at the time was a cyst on my brain (which in fact turned out to be a tumor) that I had removed seven years ago. I still have the occasional sp but am pretty well controlled by Topamax now (after trying several other meds that never did work. Don't give up, be persistant until you get the help you need.