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Epilepsy For support and discussion about Epilepsy and Seizure Disorders. |
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#1 | ||
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Senior Member
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Hi Ghost,
I'm sorry you've had a hard time with the neurologist, this has happened to me also where the neurologist didn't believe me at all that's when I turned him into Medical Conduct Board and found out he wasn't the best neurologist and he got in a lot of legal trouble with other people for Malpractice. Take my word there have been many cases where a person will have all the testing done that you mentioned and it won't show any problems and that's because the damage on the brain is in to deep for any of these tests to pick up. I had to have a video e.e.g done and they had to drill 7 holes into my head and place the electrodes on my brain in order to find some of the scar tissue but it wasn't until I had my last surgey (ultra sound) to help reduce my seizures that my neurosurgeon found even more brain damage on the left hemisphere of my brain along with the frontal lobe of my brain. The Dr. was amazed that the tests didn't show any of these problems. I hope you are able to find a good neurologist or Epileptologist. If you want to get info. you can call the Epilepsy Foundation of America at 1-800-EFA-1000 I wish you the best of luck and May God Bless You! Sue |
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#2 | ||
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Junior Member
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Thank you so much for all of your help!
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#3 | |||
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Member
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I agree with Sue, see an epileptologist. It took me six long years to be correctly diagnosed with epilepsy (they kept telling me I was diabetic and having hypoglycemic reactions). I finally had a grand mal seizure when I was six months pregnant and somebody finally figured out that I'd been having complex and simple seizure's for years. All caused by what they thought at the time was a cyst on my brain (which in fact turned out to be a tumor) that I had removed seven years ago. I still have the occasional sp but am pretty well controlled by Topamax now (after trying several other meds that never did work. Don't give up, be persistant until you get the help you need.
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Stef "Begin doing what you want to do now. We are not living in eternity. We have only this moment, sparkling like a star in our hand and melting like a snowflake." -Marie Beyon Ray |
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