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Fibromyalgia and Chronic Fatigue Fibromyalgia syndrome is a widespread musculoskeletal pain and fatigue disorder which generally occurs in the muscles, ligaments, and tendons – the soft fibrous tissues in the body. This forum is for fibromyalgia and Chronic Fatigue Immune Deficiency Syndrome (CFS/CFIDS). |
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#1 | ||
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Member
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Hello,
I just wanted to introduce myself. I've been disabled with CFIDS and Fibro since 2001. Like many of suffers, I get discouraged with the chronic nature of the illness, the pain and depression are the worst for me. I've become a different person with the illness and struggle to retain the parts of me that I adore and miss. Each day I'm grateful for what I do have though, a loving family, son & daughter, their spouses and twin 5 yr old granddaughters and a loving and supportive husband. He makes me fell loved every day and makes me laugh. I'm lucky to have him in my life. I've decided to get back into working with clay which I used to love. Silly, but it's a major decision for me. My self esteem has been 'damaged' and I don't have the confidence I used to. I'm not a SSDI guru but I have analyzed and researched how-to complete the application and consider myself an expert on that narrow a topic. . I get great joy by helping other people through the process and answering questions when I know the answer. I look forward to getting to know you and hearing the latest about CFIDS. If you do have questions about the SSDI application, please don't hesitate to post. I promise I'll answer your question to the best of my ability. If I don't know the answer I will get it for you.
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Respectfully, Trudi |
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"Thanks for this!" says: | (Broken Wings) (02-05-2010), Dmom3005 (02-09-2010), Doody (05-16-2010), numbum46 (03-11-2010), tamiloo (02-09-2010) |
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#2 | |||
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Hi Trudi,
welcome to Neuro Talk, there are lots of caring people here. I'm glad you have a loving and supportive family, this is such a good thing to have when we have such terrible diseases to cope with. Look forward to seeing you around the forum take care Kate
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Outside of a dog, a book is a man's best friend. Inside of a dog, it's too dark to read. Groucho Marx |
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"Thanks for this!" says: | (Broken Wings) (02-05-2010), tamiloo (02-09-2010) |
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#3 | |||
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Senior Member
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Welcome to NT
It's a great place to spend some time. Any help will be appreciated by applicants. That's a goodwill project you have there. I know your book will sell. My tip for SSDI applicants is to contract their US Congressperson. I have seen Hal Rogers work very hard to help applicants. He's a great congressman. I look forward to seeing you around the board.
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(Broken Wings) . . |
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#4 | ||
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Quote:
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Respectfully, Trudi |
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"Thanks for this!" says: | (Broken Wings) (02-05-2010), tamiloo (02-09-2010) |
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#5 | |||
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Grand Magnate
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Hello Trudy, when I read your introduction, I thought deeply of my issues with self esteem. I am an artist as well, oil painting...landscape. When you said your self esteem has been 'damaged', I finally realized why I am having problems getting back into the painting. My prior husband damaged my self esteem. Long story…
My sweetheart, who is known as Olhipie here on NeuroTalk, is gently trying to encourage me to get back into it. He has bought me all the stuff needed to paint again…but I push it away even though I long for it. I am so excited you are here on NeuroTalk and wanted to say welcome and hope to get to know you better. You take care, and have the best day!! ![]()
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My best friends live in my computer.... . Suffered with back problems since birth...7 back surgeries to date, the last one being on 5/13/2015. Fibromyalgia, PTSD, Chronic Pain “Being my sweethearts full-time care partner, I have to remind myself, when some well-meaning friend or relative questions my methods or motives, that I know more than they do because I Live this life 24/7, and they only come for short visits.” Tamiloo . Gotta love my Olhipie! Dx'd RRMS 1986, SPMS 2004 . Watch my Olhipie Skiing.... . |
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"Thanks for this!" says: | Doody (05-16-2010) |
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#6 | ||
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New Member
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I have just been diagnosed with Fibro..I've heard it is difficult to win SSDI for Fibro..do you recommend having representation even for the initial filing..?
thanks..Lisa I just wanted to introduce myself. I've been disabled with CFIDS and Fibro since 2001. Like many of suffers, I get discouraged with the chronic nature of the illness, the pain and depression are the worst for me. I've become a different person with the illness and struggle to retain the parts of me that I adore and miss. Each day I'm grateful for what I do have though, a loving family, son & daughter, their spouses and twin 5 yr old granddaughters and a loving and supportive husband. He makes me fell loved every day and makes me laugh. I'm lucky to have him in my life. I've decided to get back into working with clay which I used to love. Silly, but it's a major decision for me. My self esteem has been 'damaged' and I don't have the confidence I used to. I'm not a SSDI guru but I have analyzed and researched how-to complete the application and consider myself an expert on that narrow a topic. . I get great joy by helping other people through the process and answering questions when I know the answer. I look forward to getting to know you and hearing the latest about CFIDS. If you do have questions about the SSDI application, please don't hesitate to post. I promise I'll answer your question to the best of my ability. If I don't know the answer I will get it for you.[/QUOTE] |
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#7 | |||
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Junior Member
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Are there any cases of SSDI for Fibro??
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#8 | ||
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New Member
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to trudi
Hi I was wondering how I would go about answering the question do you take care of someone. i take care of my daughter but I have alot of help from my wife and family. I have mental illness. anxiety severe depression panic attacks hep c back pain migraines I am 41 but I feel like I am my psych doctor just said put down yes and explain you have alot of help. I was going to hire a lawyer but my psych doc said you should get it first try. he has my back thanks for your help |
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"Thanks for this!" says: | Dmom3005 (03-18-2012) |
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#9 | ||
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Legendary
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WElcome
WE all have issues at times. My fibro is coming up a lot latey now. I really think it takes a special person to put up with the pan. Donna ![]() ![]() |
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introduction | New Member Introductions | |||
Introduction | New Member Introductions | |||
introduction | New Member Introductions |