Fibromyalgia and Chronic Fatigue Fibromyalgia syndrome is a widespread musculoskeletal pain and fatigue disorder which generally occurs in the muscles, ligaments, and tendons – the soft fibrous tissues in the body. This forum is for fibromyalgia and Chronic Fatigue Immune Deficiency Syndrome (CFS/CFIDS).

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Old 03-28-2007, 01:23 AM #1
AUGOLDMINER AUGOLDMINER is offline
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There may be a few cases caused by fluoride but most are probably due to a auto immune response by the body. Many people with fibro have a auto immune disorder or within 10 years will develop a autoimmune disorder.

The problem with some people is that there doctors never look for a autoimmune disorder they just blame all symptoms that someone with fibro has on the fibro.

Some autoimmune disorders can be completely masked by fibro like RA, Sjogren's.

If you have above normal CRP, ANA, SSa SSb or any auto immune type antibodies in your labs you most likely have a autoimmune disorder that caused your fibro.

When autoimmune antibodies attack your body they don't just attack the organs that are specific for that disorder. But may attack the CNS giving you fibro.

In my case the autoimmune disorder was a very rare autoimmune disorder called Castleman's Disease and it was found only becuse the doctor could not find a cause for the bad labs that he was getting instead of just blaming the fibro.

I believe my Castleman's was caused by trichloroethylene and the Castleman's caused the fibro.
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Old 03-28-2007, 03:37 PM #2
wasabi wasabi is offline
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Default Fibromyalgia and a Messed Up Immune System

AUGOLDMINER,

Thanks for your response. I agree that a messed up immune system is part of the picture for fibromyalgia. I am not satisfied to stop there though. Being able to give a name to the particular way my body/immune system is messed up is only helpful if someone has figured out how to heal that named condition. I want more than a good diagnosis. I want to know why my immune system is messed up the way it is and what I can do to get well.

I also agree that fluoride may not be the single cause of fibromyalgia in many cases. For instance, I believe that my fibromyalgia symptoms are due to Lyme disease. But consider this:

Once in the body, fluoride is a destroyer of human enzymes. Being very highly reactive, fluoride hydrolyzes enzymes, thus changing their shapes. Since enzymes are proteins, once they are changed, they become "foreign-looking" to the immune system. The body then treats them as invaders even though they were originally produced by the body. This is an autoimmune situation, right?

Quoting from the definition of fibromyalgia used for this forum, "Fibromyalgia means pain in the muscles, ligaments, and tendons – the soft fibrous tissues in the body." What do these soft fibrous tissues have in common? The body's connective tissue is composed in large part of collagen. Fluoride prevents new collagen from being properly formed. In fact, fluoride doesn't just cause collagen to be wrongly formed, it causes collagen structures, like ligaments, tendons and, and muscles to be mineralized thus reducing their flexibility and making them crunchy sounding and painful. Fluoride probably causes collagen structures to be weaker as well.

I agree that not all of the pain of fibromyalgia comes from connective tissue. It likely is a central nervous system issue as well. I don't know where fluoride fits into the CNS picture. I just believe that many people who suffer from fibromyalgia would feel better if they avoided fluoride. If people have ingested a lot of fluoride over the years, they will have stored up a lot of fluoride in their bones - so even if they stop ingesting fluoride, it will take a long time before they stop suffering from the effects of fluoride.

You mention fibro possibly masking rheumatoid arthritis. Rheumatoid arthritis is an inflammatory condition right? My understanding is that fibromyalgia does not involve inflammation.

Last edited by wasabi; 03-28-2007 at 04:24 PM.
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Old 04-02-2007, 01:43 PM #3
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Default Fibromyalgia, Chronic Fatigue Syndrome and Lyme Disease

"Dr. Donta presented the symptom lists for chronic Lyme disease, chronic fatigue syndrome (CFS), fibromyalgia (FM), and Gulf War Illness (GWI). He pointed out the similarities between them, and found there were few differences. He has treated hundreds of patients with these illnesses. He found that CFS and GWI have identical symptoms, and FM is only distinguished by a positive tender point exam, that is often positive in CFS and GWI as well. Clinically it is almost impossible to distinguish or differentiate these illnesses."

http://www.canlyme.com/fibrocfslyme.html
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Old 04-02-2007, 02:41 PM #4
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Default Antibiotic Treatment for Gulf War Veterans' Illnesses

Benefits and harms of doxycycline treatment for Gulf War veterans' illnesses: a randomized, double-blind, placebo-controlled trial.

http://www.ncbi.nlm.nih.gov/entrez/q..._uids=15262663
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