Fibromyalgia and Chronic Fatigue Fibromyalgia syndrome is a widespread musculoskeletal pain and fatigue disorder which generally occurs in the muscles, ligaments, and tendons – the soft fibrous tissues in the body. This forum is for fibromyalgia and Chronic Fatigue Immune Deficiency Syndrome (CFS/CFIDS).

 
 
Thread Tools Display Modes
Prev Previous Post   Next Post Next
Old 05-17-2011, 06:46 AM #5
darlindeb25's Avatar
darlindeb25 darlindeb25 is offline
Member
 
Join Date: Aug 2006
Posts: 744
15 yr Member
darlindeb25 darlindeb25 is offline
Member
darlindeb25's Avatar
 
Join Date: Aug 2006
Posts: 744
15 yr Member
Default

Thanks Peter. I do research, all the time. I have been at this for years. I do have other issues and I am dealing with them as best I can. I am gluten intolerant (gluten free for nearly 11 yrs), now totally grain free (all grains contain gluten, not just wheat, rye, and barley), nightshade free, cruciferous veggie free, sugar free, processed foods free. I lost 95# last year and have kept every # off..lost it from March to Oct and have kept the weight stable since Oct. I have small fiber sensory polyneuropathy, seeing a neurologist, who I might add wanted me tested for adrenal insufficiency (mainly because of my low BP). I have my cholesterol down to 158, my pre-diabetic levels are gone, glucose now around 85. I have had so many blood tests it would seem like I have been drained, cat scans, MRI's, recently 22 x-rays for arthritis, a diagnosis of CFS (2 yrs ago), fibromyalgia (March, which I know I have been dealing with for years and years). We have done the process of elimination over the last several years. I have seen an endo, and ENT, a sleep doctor (diagnosed with sleep apnea nearly 3 yrs ago)..I have the best neuro out there, my PCP's are great. Where do I go from here? Exercise and the good diet I eat now...hopefully will work for me. I can't take medications, they all cause flares in my healing leaky gut, another syndrome, I'm guessing is what you are thinking. It's all a Catch 22, we do what we have to do.

I'm not trying to be rude. I have been tested and retested, then tested some more. Brain MRI, cervical MRI, sinus cat scan, abdominal cat scan, abdominal MRI, bone density, EKG's, EMG's (both types for nerve conduction testing), gene testing...it's all been done, sometimes over done.

Even if CFS isn't a real diagnosis to you, I know I am chronically fatigued and no one has figured it out. I take vitamins, B Complex, B12, multi, Vit D..I walk daily.

I'm trying, no one can ever say I haven't gave it all I gots!
__________________
Deb

We urge all doctors to take time to listen to your patients.. don't "isolate" symptoms but look at the whole spectrum. If a patient tells you s/he feels as if s/he's falling apart and "nothing seems to be working properly", chances are s/he's right!
darlindeb25 is offline   Reply With QuoteReply With Quote
 


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Could this be fibromyalgia? sunnydee Fibromyalgia and Chronic Fatigue 15 08-02-2013 09:22 PM
RSD or Fibromyalgia? Patti_Christmas Reflex Sympathetic Dystrophy (RSD and CRPS) 8 05-04-2013 10:34 PM
Fibromyalgia and/or MS Leanz Multiple Sclerosis 20 05-08-2009 06:07 PM
Is it fibromyalgia? Leanz Fibromyalgia and Chronic Fatigue 5 01-16-2009 10:20 AM
fibromyalgia - Gabapentin side effects questions gaylet New Member Introductions 4 10-13-2007 05:09 PM


All times are GMT -5. The time now is 11:31 PM.


Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.