Fibromyalgia and Chronic Fatigue Fibromyalgia syndrome is a widespread musculoskeletal pain and fatigue disorder which generally occurs in the muscles, ligaments, and tendons – the soft fibrous tissues in the body. This forum is for fibromyalgia and Chronic Fatigue Immune Deficiency Syndrome (CFS/CFIDS).

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Old 05-28-2011, 08:43 PM #1
Peter B Peter B is offline
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Have you tried pro-biotics and/ or natural yoghurt with a high bacilli count to get the gut healthy?
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Old 05-29-2011, 07:17 AM #2
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Oh yeah, probiotics kill my stomach. Being as sensitive as I am, I find if I just stick with the foods I know do not bother me, I do much better. I have a friend whom can not take probiotics either and neither of us can eat yogurt...both of us dairy intolerant. One day I may try to figure out how to make yogurt from my almond milk, but then still, you need some sort of culture to make the yogurt, and that seems to be the issue for us both. For some of us, the plainer the better..we do best without meds, probiotics, and such.

It will be 11 yrs gluten free for me in July. Over that 11 yrs I have learned so much about this old body of mine. I often times say I wish I had plain old celiac disease and not all these other issues.Life would be so much simpler for me then.

Life isn't so bad though. I am at a weight I haven't seen since I was 17, even wear a smaller size now than I did then. For now my fibro seems to be stable, and if I could get the fatigue under control, I would be much happier. As for the headaches, I have had them for so long, they seem like a daily part of my life now! Sad to say, isn't it?

So, how are you, do you have health issues too? Or have you told me? The memory isn't always so good either!
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We urge all doctors to take time to listen to your patients.. don't "isolate" symptoms but look at the whole spectrum. If a patient tells you s/he feels as if s/he's falling apart and "nothing seems to be working properly", chances are s/he's right!
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Old 05-31-2011, 12:26 AM #3
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Have you tried goat's milk instead. I think it can be a successful alternative.
Do you think that your fatigue is actually caused by an inadequate diet, in view of the gut problems that you have?
Can be hard to get the right balance (whatever that is!) with enough fats, minerals, enzymes etc.
I've just read a book called The Diet Delusion, and that was an eye opener on the history of dietary advice. So much that we are told is just wrong, unproven or liable to lead to obesity.
Also describes how refined carbs seem to leech vitamins out of the body. The bad guys are definitely refined carbs, no doubts at all. Been known for a long time but it upsets the big companies so it gets no traction.
See if your library has it.

My ailments are mostly to do with a worn spine, so I get lots of pain in my neck, shoulders and lower back. This PC work is the worst!!! My shoulder just burns after just a few minutes of it.
I'm trying to minimise my pain meds and stay on the simple stuff, but I often need just a bit more. Usually I'll put up with it but then can't do anything as I just don't feel good.
No treatment for a worn spine, just pain meds or death!!! Trying the first one....
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Old 05-31-2011, 05:57 AM #4
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Quote:
No treatment for a worn spine, just pain meds or death!!! Trying the first one....
I'm happy to hear you made the right choice!!!Once when I asked a customer how he was doing, he said to me, "Well, I'm just happy to be looking down at the daisys instead of pushing them up!" I use that line often!

I will do a search at our library for that book, if not there, maybe in Amazon. I find often times you can buy used books in Amazon for next to nothing and I have never received one that didn't look like new.

My back has been givign me problems as of late, my neck/shoulder area all the time. Sometimes when I am sitting here, I keep an ice pack on my neck (I keep this rice filled pad in my freezer)..I find ice and/or heat work the same for me, just depends on how I am feeling at the moment as to which one I use.

The only carbs in my diet are in my veggies and nuts and they are very low in carbs and good carbs at that. For the foods I have left that I can eat, they are all very healthy. I eat no sugar other than the natural sugars in fruits, only use stevia for sweetener, make my own almond or walnut butter, my own almond milk..actually I feel I am eating healthier than I ever have. Thankfully, I do not get bored with my food. That's not saying I never miss the things I can't have. As sick as I get when I eat something I can't have, it's enough to keep me from touching any of those foods.

After being so sick from the meds, I haven't even tried taking an ibuprofen for pain. When I walk, my neck/shoulders scream, my knees ache, and my feet cry, yet I just keep telling myself this is my medicine and I must do it for my health.
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We urge all doctors to take time to listen to your patients.. don't "isolate" symptoms but look at the whole spectrum. If a patient tells you s/he feels as if s/he's falling apart and "nothing seems to be working properly", chances are s/he's right!
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Old 06-03-2011, 11:24 AM #5
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Thanks for your comments everyone...im still in limbo-land awaiting an MRI (insurance approval) before I can move on with finding out whats wrong. More and more im convinced its MS and my doctors even wrote on my charts (could be MS/possible MS) which scares the ever-livin out of me! I also have recently gotten vertigo/blurry vision/and shooting pain thru my head and neck which makes me think even more that theres something serious going on. I was just curious Deb I know you mentioned you were sugar free so does that mean you are using sugar free products (like artificial sugar)? If you are then I defintely think your symptoms could be coming from that. You should look up Aspartame poisening its really interesting how it relates to so many neurological/physical ailments and can rid you of a lot of them if you stop using products with the fake sugars in them. But anyways thanks for the comments and please please keep me in your prayers that its not MS.
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Old 06-03-2011, 08:31 PM #6
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Quote:
I was just curious Deb I know you mentioned you were sugar free so does that mean you are using sugar free products (like artificial sugar)?
Absolutely not, never again. I use Stevia, brand Truvia for now. I am growing my own stevia, won't know until fall how I do with it. I gave up all artificial sweeteners. I honestly feel they were keeping me from losing weight. The only thing that changed when I gave up the sweetener was the weight loss.
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We urge all doctors to take time to listen to your patients.. don't "isolate" symptoms but look at the whole spectrum. If a patient tells you s/he feels as if s/he's falling apart and "nothing seems to be working properly", chances are s/he's right!
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Old 06-10-2011, 01:46 PM #7
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I won't touch sweaters except stevia which I like quite a bit.

Avoid all unnatural and processed sugars, including HFCS
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