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Fibromyalgia and Chronic Fatigue Fibromyalgia syndrome is a widespread musculoskeletal pain and fatigue disorder which generally occurs in the muscles, ligaments, and tendons – the soft fibrous tissues in the body. This forum is for fibromyalgia and Chronic Fatigue Immune Deficiency Syndrome (CFS/CFIDS). |
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03-23-2007, 07:02 AM | #1 | |||
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Senior Member
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Use Fibromyalgia in the place of Bipolar Disorder.
It's All in Your Head And Other Thoughtless Things Said! How often have you been accused of whining or being a hypochondriac? Do people think you are just a complainer, an attention-seeker, when depression makes it difficult for you to cope with daily life? Are you told that "there is absolutely nothing wrong with you"? Do people tell you to "get over yourself"? I am sure that everyone with bipolar disorder have had those completely thoughtless things said which we can quote verbatim five, ten and even thirty years down the road. Sometimes those with whom we interact can be narrow-minded and cutting. And, for every person who says something deliberately hurtful to a person with mental illness, there are a dozen who say things thoughtlessly or out of ignorance. Unfortunately – regardless of intent - words wound, fester and scar. The following is a short list of things people say that are often intended to be helpful, but are actually tactless. Perhaps these will better equip you to respond to the thoughtless comments and to illustrate the need for each of us to better think through our word choices.
Kahn, D.A., Keck, P.E., Perlis, R.H., Otta, M.W., & Ross, R. (2004). Treatment of Bipolar Disorder: A Guide for Patients and Families. From www.bipolar.about.com
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. Enjoy when you can, and endure when you must. -- Goethe Diagnoses: FM, Sciatica, Rosacea, Piriformis Syndrome, SI joint disfunction, Joint Facet Syndrome L3-L5, Pinched Nerve (somewhere on the left side), Depression, Anxiety and Bipolar II . |
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03-26-2007, 06:36 PM | #2 | |||
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Grand Magnate
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I don't even try to explain my fibro to most people. It's so comforting when I meet people who have fibro and completely understand what it's all about. My family is very understanding about it as well. Especially my mother, which surprised me most of all, lol.
I'll never forget when I had my first flare and thought I was going to absolutely die. I was told by both my pdoc and the arthritis specialist that I just had some elusive virus that had taken good hold of me. By the time I went back my 3rd time, they diagnosed the fibro. The only thing that got me through that first and most major flare was ... I just forgot. It'll come to me in a minute here. Percodan! That's it. The chronic myofascia pain really gets to me. It's difficult when you walk around looking 'normal' but definitely don't feel normal and people just don't understand.
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. . . . . . Bruna - rescued from a Missouri puppy mill |
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03-28-2007, 12:15 AM | #3 | ||
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Junior Member
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I personally haven't been diagnosed with fibromyalgia, but I have sarcoidosis which is another autoimmune disorder.
I know how frustrating it is for the "normal" people to look at us as if we are crazy or freaks. I figured I would share this conversation with you - it's good for a giggle at least I had stage 3 breast cancer and bilateral mastectomies last year. I decided not to have reconstruction and not to wear prosthetics. I had cancer, it's nothing to be ashamed of, right? Well, one day I was in the grocery store and the following conversation took place: Weird Man: Hmmmmmmmmmmmm (staring at flat chest)....where did they go? Me: Well Sir, you see, I just wasn't at all happy with them, so I returned them to the hospital. When we left the store a few minutes later, he was still scratching his head and looking puzzled The "normals" will never understand us, until they are in our shoes. Until then, we gotta find the humor when we can *Hugs* Michelle |
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03-28-2007, 02:26 AM | #4 | ||
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Junior Member
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With me it is people with all the cures that people hear from friends or off the Internet. or the people that had a relative that had fibro 15 years ago and still thinks it is "all in your head". and dose not hear from that relative because the relative has not talked to them in 15 years because of there comments.
The other is the people that think that if I get meds to treat my depression my fibro will go away. I DO NOT HAVE DEPRESSION. NEVER HAD. The best by far did not have to do with fibro. A year ago I had bypass surgery and last fall I had some joker that wanted me to put a shirt on at the beach because they did not like seeing the scar down the center of my chest. What i told him I won't print on this site. I think I will go back to going to nude beaches from now on as nudist are a lot more respectful of others. By the I am a Emergency Medical Technician and know more then most people about fibro or how the body works |
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