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Fibromyalgia and Chronic Fatigue Fibromyalgia syndrome is a widespread musculoskeletal pain and fatigue disorder which generally occurs in the muscles, ligaments, and tendons – the soft fibrous tissues in the body. This forum is for fibromyalgia and Chronic Fatigue Immune Deficiency Syndrome (CFS/CFIDS). |
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#1 | ||
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New Member
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Hello All! I am new to this forum, but not new to pain!
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#2 | ||
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Legendary
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I would definately find a different doctor if the pain doctor isn't interested
in working with you. Either the neurologist, or a reumotologist, which is who I think sometimes works with fibro patients. I just went to my primary yesterday, and he is the one that knew to raise my gabapentin and change some things. When my pain doctor just wanted to start something new. I can't afford new meds, that are more expensive, so I am glad he listens. Donna ![]() ![]() |
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"Thanks for this!" says: | ohmab (12-16-2011) |
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Junior Member
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My rheum has always been my fibro doc. The first doc who ever said I had fibro was a sports doc, sports rheum I think, if that exists. I did not believe although I did have minor fibro symptoms. I didn't really believe until years later when i was diagnosed with MCTD and fibro. Many autoimmune diseases are accompanied by fibro so a rheum is probably your best answer.
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#4 | ||
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New Member
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Thanks for your speedy responses! It sounds like a good idea to go the Rheumatologist route! This is all just so confusing!
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"Thanks for this!" says: | Dmom3005 (12-16-2011) |
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#5 | ||
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Legendary
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Yes a Reumy, is probably good.
But its best also to keep as low on number as possible doctors when you haven't insurance. And that sometimes is a problem. Donna ![]() |
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#6 | ||
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New Member
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Luckily, I do have insurance through our state pool for people who have been denied insurance due to pre-existing conditions (aren't they all?) - it is expensive and there is a hefty deductible and co-pay, but at least it is something.
I do think getting a lot of doctors involved can be a problem though, because everything does become quite fragmented. I have a followup with my PC at the end of the month and will discuss some options. Although, I have to say, I think that she mis-prescribed the dosing on the gabapentin - she had me taking it 1 X 300 in the am and 2x300 at bedtime - which made me wake up with horrible headaches. After researching on the web, I discovered that the appropriate dosing is 3 x day. So I divided up the doses and it seems to not have the headache side affect. The big question now - is, is it really working. I am not noticing a big difference, maybe a little bit better. I hesitate to keep going up and up in dosage.... I think I would like to give the Lyrica a try before increasing the other - but it is expensive and that is a big draw back. On the other hand, if it works it will be priceless! ![]() |
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