Fibromyalgia and Chronic Fatigue Fibromyalgia syndrome is a widespread musculoskeletal pain and fatigue disorder which generally occurs in the muscles, ligaments, and tendons – the soft fibrous tissues in the body. This forum is for fibromyalgia and Chronic Fatigue Immune Deficiency Syndrome (CFS/CFIDS).


advertisement
Reply
 
Thread Tools Display Modes
Old 02-20-2012, 06:03 PM #1
jiardina jiardina is offline
New Member
 
Join Date: Feb 2012
Location: IL
Posts: 4
10 yr Member
jiardina jiardina is offline
New Member
 
Join Date: Feb 2012
Location: IL
Posts: 4
10 yr Member
Default New to the site and need advice

Hi. I'm new to this site and hoping for some advice. (also posted in general) I have had severe headaches for quite awhile now. They started in 2009 and have gotten progressively worse over time. In Sept. of 2010 I was given a nerve block by my neurologist. It worked just fine. Then, this last Dec. (2011) I went back to have another one because the headaches came back with a vengeance. It did not work at all this time. I was miserable. At this point my pain was the entire back of my head, neck, shoulders, spine, lower back, shoulders, arms (down to my elbows feel like lead), hips and ankles. My dr gave me meds with codeine which did nothing. He then told me I had fibromyalgia. I am currently on 20 mg of cymbalta and have only been on it for little over a week. So far it has done nothing as well. I still hurt, I don't sleep well (due to my hips hurting) and really need some advice. Does this really sound like fibromyalgia? The only reason I can think of for the dose being so low is that I am also epileptic. Any ideas anyone has would be greatly appreciated!
jiardina is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Dmom3005 (02-27-2013), tamiloo (02-21-2012)

advertisement
Old 02-20-2012, 10:06 PM #2
aussiemom's Avatar
aussiemom aussiemom is offline
Member
 
Join Date: Feb 2008
Location: Florida
Posts: 556
15 yr Member
aussiemom aussiemom is offline
Member
aussiemom's Avatar
 
Join Date: Feb 2008
Location: Florida
Posts: 556
15 yr Member
Default

Can you get in to see a pain mgmt. doc? He could do trigger point injections. It may be a good idea to check in with a neuro about the headaches. Generaly with fibro you hurt ALL over, some say like flu, others say an 18 wheeler got them. For me, it's about school bus size. As for meds, 20 mg Cymbalta is low, I can't stay awake on it. It is frustrating, we each have our own mix that works. It's a lot of try this, nope, try that. Vitamin D3 seems to help, have doc order a blood draw for that. Hope this helps some.
__________________
Barb
aussiemom is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Dmom3005 (02-27-2013), tamiloo (02-21-2012)
Old 02-21-2012, 09:37 AM #3
jiardina jiardina is offline
New Member
 
Join Date: Feb 2012
Location: IL
Posts: 4
10 yr Member
jiardina jiardina is offline
New Member
 
Join Date: Feb 2012
Location: IL
Posts: 4
10 yr Member
Default

Don't know but will check. My next appt is march 6th. My dr had mentioned before either a chiropractor or acupuncture but I'm not crazy about the latter. My sister-in-law had also mentioned seeing a nerve dr. My dr is a neuro. I've been seeing him since I was a teen (I'm 43 now) for seizures. He originally gave me the occipital nerve block for the headaches but that's no longer working. I'm sick of trying different meds that don't work. I don't know what else to do.
jiardina is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
tamiloo (02-21-2012)
Old 02-21-2012, 04:09 PM #4
tamiloo's Avatar
tamiloo tamiloo is offline
Grand Magnate
 
Join Date: Oct 2006
Location: Northern Utah
Posts: 3,465
15 yr Member
tamiloo tamiloo is offline
Grand Magnate
tamiloo's Avatar
 
Join Date: Oct 2006
Location: Northern Utah
Posts: 3,465
15 yr Member
Default

You might want to see a Rheumatologist...for sure would be able to look into the Fibro diagnosis. Hope you find some answers with your next appointment. I did Cybalta and found no relief. It made me so tired, non-functional.

I have been having some really bad Fibro days...weather doesn't help!!
__________________
My best friends live in my computer....
.
Suffered with back problems since birth...7 back surgeries to date, the last one being on 5/13/2015. Fibromyalgia, PTSD, Chronic Pain

“Being my sweethearts full-time care partner, I have to remind myself, when some well-meaning friend or relative questions my methods or motives, that I know more than they do because I Live this life 24/7, and they only come for short visits.” Tamiloo


.
Gotta love my Olhipie! Dx'd RRMS 1986, SPMS 2004

.
Watch my Olhipie Skiing....

.
tamiloo is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Dmom3005 (02-27-2013)
Old 02-26-2012, 10:58 PM #5
jiardina jiardina is offline
New Member
 
Join Date: Feb 2012
Location: IL
Posts: 4
10 yr Member
jiardina jiardina is offline
New Member
 
Join Date: Feb 2012
Location: IL
Posts: 4
10 yr Member
Default

Hi tamiloo!! Hope you have been doing good. I caught a cold from my husband and have spent the last several days fighting it. It's been miserable. I've noticed that when I stand for any amount of time my spine and lower back hurt that much more. I was telling my mom about it and she asked me if I remembered this and that from my childhood and when I said no, she filled me in. When I was little my feet turned all the way in to where my toes touched. The dr back then put me in special shoes (not leg braces) to straighten my feet out. Apparently, that's how my family knows when I'm tired now, my feet will turn slightly in. She also said I used to see a chiropracter at one time and that he had taken x-rays of my spine and that it is curved. She started looking for him when she found out I was having problems but no luck. It was sooo long ago. Wish she had gotten the x-rays from him back then. All I can do now is just tell my current dr about it and have him take new x-rays, I s'pose. I found a site that has beginners moves for yoga and think I'm going to try that. Have you ever done yoga and if so, does it help at all?
jiardina is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Dmom3005 (02-27-2013)
Old 02-27-2012, 01:08 PM #6
Dmom3005 Dmom3005 is offline
Legendary
 
Join Date: Aug 2006
Location: Indiana
Posts: 13,019
15 yr Member
Dmom3005 Dmom3005 is offline
Legendary
 
Join Date: Aug 2006
Location: Indiana
Posts: 13,019
15 yr Member
Default

Jiardiana

Hello, I'm Donna. And I have fibromyalgia. I was on cymbalta and it worked
very well for me. I lost my insurance and had to go off.

Now I'm on celexa's generic and its helping to some degree. Which surprises me because its not for pain. But I take gabapentin and other things too.

I do massage for my fibro, and it helps a lot. You might check into that.

I know nothing about yoga or chiro or acpuncture.

I know lots go to neuro's. I use my primary and a pain doctor. I like
the pain doctor.

WOuld recommend that too.

Donna
Dmom3005 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
jiardina (02-28-2012)
Old 02-27-2013, 08:00 PM #7
biobabe biobabe is offline
Junior Member
 
Join Date: Aug 2012
Posts: 35
10 yr Member
biobabe biobabe is offline
Junior Member
 
Join Date: Aug 2012
Posts: 35
10 yr Member
Default Mps

Sometimes, trigger points as part of myofascial pain (MPS), can lead to headaches. Have you checked into this at all?

Good luck!
biobabe is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Dmom3005 (02-27-2013)
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Anyone have advice on an extraction site not healing after 4 months? Ana474 Dentistry & Dental Issues 22 01-11-2014 10:58 AM
Also New to this Site, but not to MG Christel Jackson Myasthenia Gravis 2 06-08-2011 05:32 PM
Hi, I'm new to this site kronikpainz New Member Introductions 4 06-05-2009 06:08 PM
New to This Site jamesp New Member Introductions 10 08-07-2007 05:07 PM
New Site - Still needing Advice Susanmkemp Multiple Sclerosis 9 09-28-2006 07:04 PM


All times are GMT -5. The time now is 07:08 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.