Fibromyalgia and Chronic Fatigue Fibromyalgia syndrome is a widespread musculoskeletal pain and fatigue disorder which generally occurs in the muscles, ligaments, and tendons – the soft fibrous tissues in the body. This forum is for fibromyalgia and Chronic Fatigue Immune Deficiency Syndrome (CFS/CFIDS).


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Old 07-28-2013, 10:52 PM #1
Mag23 Mag23 is offline
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Default Fibro/Sleep

I was diagnosed with Fibro years ago so by now I am pretty used to all my symptoms but lately I've noticed a horrible case of restless leg (and arm) I guess I will call it "restless limb" when I get into bed. All I want to do is sleep but instead I'm kicking my legs and flailing my arms until after about 3 hours later I tire myself out and fall asleep but by then it's too late because my alarm goes off at 5am for work. Anyone else with Fibro/Pain get this way too? If so what besides Neurontin, Cymbalta and Lyrica help? I've been taking a flexeril before bed but it's not helping. I'm thinking my next step is Benadryl?
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Old 07-28-2013, 11:07 PM #2
Peter B Peter B is offline
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Originally Posted by Mag23 View Post
I was diagnosed with Fibro years ago so by now I am pretty used to all my symptoms but lately I've noticed a horrible case of restless leg (and arm) I guess I will call it "restless limb" when I get into bed. All I want to do is sleep but instead I'm kicking my legs and flailing my arms until after about 3 hours later I tire myself out and fall asleep but by then it's too late because my alarm goes off at 5am for work. Anyone else with Fibro/Pain get this way too? If so what besides Neurontin, Cymbalta and Lyrica help? I've been taking a flexeril before bed but it's not helping. I'm thinking my next step is Benadryl?
Instead of yet another drug and associated side effects, I'd suggest you try a simple magnesium supplement. Definitely helps muscles relax.
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Old 08-02-2013, 04:54 PM #3
Blossom25 Blossom25 is offline
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Quote:
Originally Posted by Mag23 View Post
I was diagnosed with Fibro years ago so by now I am pretty used to all my symptoms but lately I've noticed a horrible case of restless leg (and arm) I guess I will call it "restless limb" when I get into bed. All I want to do is sleep but instead I'm kicking my legs and flailing my arms until after about 3 hours later I tire myself out and fall asleep but by then it's too late because my alarm goes off at 5am for work. Anyone else with Fibro/Pain get this way too? If so what besides Neurontin, Cymbalta and Lyrica help? I've been taking a flexeril before bed but it's not helping. I'm thinking my next step is Benadryl?
Yes I have the same thing and the best thing that has helped so far is 1600 to 2000 mg of magnesium. I also take flexoril at night or when I get the shakes and tremors. I would suggest you check with your Dr. to make sure he agrees with the Magnesium amount. My Dr. is thrilled I've finally found something that is helping. Good luck Mag23.
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Old 08-22-2013, 09:48 PM #4
Blossom25 Blossom25 is offline
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Mag, would you be interested in coming to the Fibro Family Group? I would love to have you in our little group. So far, we are little. I just started it last week. But, there are three of us now and you would be so welcomed. Blossom25
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Old 10-21-2013, 10:33 AM #5
APJH APJH is offline
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Quote:
Originally Posted by Mag23 View Post
I was diagnosed with Fibro years ago so by now I am pretty used to all my symptoms but lately I've noticed a horrible case of restless leg (and arm) I guess I will call it "restless limb" when I get into bed. All I want to do is sleep but instead I'm kicking my legs and flailing my arms until after about 3 hours later I tire myself out and fall asleep but by then it's too late because my alarm goes off at 5am for work. Anyone else with Fibro/Pain get this way too? If so what besides Neurontin, Cymbalta and Lyrica help? I've been taking a flexeril before bed but it's not helping. I'm thinking my next step is Benadryl?
Hi Mag23. I'm 42 and was diagnosed with fibro 18 months ago, though I've had the symptoms for about 6 years. Also have RLS (since childhood) and small-fiber neuropathy in my feet/legs.

Years ago, I read that magnesium before bedtime helps with RLS, but I did not know how much to take, so took only 250mg. Just recently I learned I can take 1,000mg a day (some people say more is OK). I take it an hour or so before bed and I find it helps me, at least initially. Sometimes I still wake up in the middle of the night and writhe around for a while. I've also heard it helps with fibro leg pain as well.

I've had the same experience with flexeril--doesn't do much for me. My doc prescribed low-dose Ambien, but I only take it when I really need a full night's sleep and am fairly certain I won't get one (about once a week).

It's all a guessing game, in some ways. We just have to find what works for each of us as individuals. Best of luck to you!

APJH
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