Fibromyalgia and Chronic Fatigue Fibromyalgia syndrome is a widespread musculoskeletal pain and fatigue disorder which generally occurs in the muscles, ligaments, and tendons – the soft fibrous tissues in the body. This forum is for fibromyalgia and Chronic Fatigue Immune Deficiency Syndrome (CFS/CFIDS).


advertisement
 
 
Thread Tools Display Modes
Prev Previous Post   Next Post Next
Old 07-07-2014, 11:21 PM #1
kalli kalli is offline
New Member
 
Join Date: Jul 2014
Posts: 4
8 yr Member
kalli kalli is offline
New Member
 
Join Date: Jul 2014
Posts: 4
8 yr Member
Post advice for a young one

Having fibro, myofascial, neuropathy, sciatica and 3 herniated discs (lumbar), SI joint dysfunction, DDD, and stenosis. I need it tattooed somewhere to keep up the list....sadly some people have more and they have my sympathy and prayers!!!!
I feel like when I get one "okay" the other decide to act up. I have been diagnosed with fibro/myo for over 2 years; thought it is I've had it most of my life. I was a preemie (1lb 8 oz; 20 weeker). I've put my body through some hard stuff (racing, taekwondo, weight training) but not as much as some, I realize that. At 28, my parents are in better shape than I am (pain wise). I have managed to get off all my meds (Cymbalta--hell; and arthrotec) and am only taking vitamins and tylenol or aleve to take the edge off pain.
I get massages (trigger release) twice a month. Expensive but needed.
I am having trouble now with my neuropathy (came back after I got off Cymbalta, I am allergic to Gabapentin). I take pro-biotics to help my immunity. I was wondering: What is a good position to sleep in when your legs act up?
Also: My arms and legs do okay with movement but if I have to hold something for a period of time, my arms get real weak. If I stand still for a period of time my legs get real wobbly.
I am back in Taekwondo once a week to help me lose the 30+ pounds I gained from my meds and my sedentary lifestyle. I don't expect miracles, but I know people have good advice.

Thank you for your patience and may you know each day is not in vain.

Blessings,
Kalli
kalli is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Lara (07-19-2014)
 


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Looking for advice from moms with rsd and young children Allanira Reflex Sympathetic Dystrophy (RSD and CRPS) 4 11-12-2013 03:06 PM
TBI\Concussion impacts for those who are young and those not so young rmschaver Traumatic Brain Injury and Post Concussion Syndrome 4 07-31-2012 04:08 PM
too young tornado New Member Introductions 2 02-23-2011 02:13 AM
MVD for someone young with TN sadie324 Trigeminal Neuralgia 2 02-06-2011 02:28 PM
too young to have TN bthomas527 Trigeminal Neuralgia 3 11-22-2010 01:48 PM


All times are GMT -5. The time now is 07:30 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.