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Fibromyalgia and Chronic Fatigue Fibromyalgia syndrome is a widespread musculoskeletal pain and fatigue disorder which generally occurs in the muscles, ligaments, and tendons – the soft fibrous tissues in the body. This forum is for fibromyalgia and Chronic Fatigue Immune Deficiency Syndrome (CFS/CFIDS). |
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Welcome to the FM forum. Sorry you are here but glad you found a source to possibly help with a listening ear and responses from others who share your symptoms. I too was diagnosed with fibro when I was 38. Started in face, head, neck areas. It gradually spread through trauma to other areas. However, I was able to keep it in check with trigger point injections. Unfortunately, now it is full body and it is difficult to treat with tpi's. If you can find someone who is extremely knowledgable about TPI's you may want to try that route. Maybe they could just try one area at a time (neck, shoulders, etc.)
I have not found any drugs that help relieve the pain. I've tried over 40 including morphine, etc. I have severe facial pain and TMJ also. I have found that anything invasive(ex:- IV) or any trauma (falls, people hugging me very hard, shaking my hand,etc.) triggers it off. I feel like the "bubble girl" and should wear a sign "DO Not Touch". Unfortunately, medical exams by drs. or dentists as well as treatment have triggered off new areas of FM. I could give many examples but my arms hurt too much to type any more. Be cautious of Dr. visits and investigate any suggested treatments. Best wishes to you. PM me any time if you'd like. I am retired now as I am disabled due to FM , RSD, etc. Sydney |
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Legendary
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I hear ya Sidney!! There's times I can't even stand a coat on my shoulders. I have even given up wearing turtlenecks, as when I'm hurting... I don't want anything heavy touching my shoulders/neck area.
Miserable is the best word I can use to describe FM.
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DM . |
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