Fibromyalgia and Chronic Fatigue Fibromyalgia syndrome is a widespread musculoskeletal pain and fatigue disorder which generally occurs in the muscles, ligaments, and tendons – the soft fibrous tissues in the body. This forum is for fibromyalgia and Chronic Fatigue Immune Deficiency Syndrome (CFS/CFIDS).


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Old 09-08-2007, 04:18 AM #7
pono pono is offline
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Join Date: May 2007
Posts: 270
15 yr Member
pono pono is offline
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Join Date: May 2007
Posts: 270
15 yr Member
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Mel..its been awhile since I've been in this Forum but after reading your posts, wanted to respond.
I've gone thru crazy making of What was causing WHAT. or What is WHAT...(still do....) I've learned that FMs , beside being a crazy making condition, is a great exacerbator--of pain & more....my neuro believes its CNs (Central Nervous system) dysfuntion w/
"sensitization"--pain amplification in addition to other problems & manifestaions ....

sydromes/ disorders like FMS are usually treated per symptoms presented, Whether it's pain --in its variety of manifestations or other problems.... until find Cure or that miracle med , best can do is find best treatmts w/ what's availbable now, focused on the areas/problems that need attention.... and hope for best... (hope that makes sense)

I have challenges w/ other condtions & issues (besides FMS) as many in Forums such as yourself. We're all unique, respond differently....to situations, interventions, meds, etc.

I was Dx'd : FMS 10+ yrs ago, following an accident (TBi & other injurys that weren't healing well) Earilier that year, I'd had GYN surgery( will forego details ...) intention /point here is that I had great difficulty healing from that surgery--even tho it was minimally invasive Lap (small incision in navel) by a very competant & trusted Gyn Dr/surgeion. many long pain filled months, very slow recovery...

My situation & Hx different than yours . I've had several GYN surgerys (not all minimally invasivebut all resulted in scar tissues-adhesions -forming which caused more problems & pain, and vicious cycle of more surgery.
I also feel there was some type of nerve damage or entrapment that also contributed to years of chronic pelvic pain, that I still have.

When GYN problems & more severe pain surfaced again last year, I saw several DRs. One GYN wanted total hysterectomy; another felt it was probably bladder problem--IC -interstitial cystytis. I had tests done by urologist who said it wasn't IC but "irritable bladder' ; prescribed Enablex, which has helped w/ some pain & urinary problems but chronic & often severe pain continued.... I feel adhesions are again the primary culprit... tho another GYn disagrees... but did express NO surgery should be done.

My neuro ( who treats FMS in addition to other neuro conditions) advised me NOT to have ANY surgery, unless it was life threatening.
Nerve & other issues were cited --per your last post these seem to be concerns for you too. I feel it's good you've chosen to wait & get other opinions from others So many people quickly jump on surgery which can help & may be needed, but can & often creates more or other problems....

PM me if interested. or want to discuss more... I've already rambled on much here....

Hope you find answers & needed help/interventions --whatever you chose, it's your body which you know best! and also have to live in....

You said were also Dx'd w/ Tarlov Cyst.... what was outcome of appt w/ neuro?? Please update...
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