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Fibromyalgia and Chronic Fatigue Fibromyalgia syndrome is a widespread musculoskeletal pain and fatigue disorder which generally occurs in the muscles, ligaments, and tendons – the soft fibrous tissues in the body. This forum is for fibromyalgia and Chronic Fatigue Immune Deficiency Syndrome (CFS/CFIDS). |
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I have been hanging out on the MS board because I feel like I have more than just fibro, I have had a clear MRI so Dr doesn't feel it's MS but I have SX that don't look like fibro to me. My LP came back suggesting MS but there was no o-bands so it was positive for MS. Anyway here is my full SX list, am I crazy for thinking this looks like is more than just fibro?
Blurred vision, eye pain - comes and goes Jerky Eye Movements - comes and goes Flashing lights in eyes - comes and goes floaters, spots that move on eyes - all the time Muscle weakness and numbness - most of the time Spasms, Cramps, Involuntary contraction of muscles - most of the time Restless Leg Syndrome - most nights Shaking - all the times, is worst at times Partial numbness, tingling, buzzing and vibration sensations - comes and goes Nerve pain and electrical shock sensations - comes and goes Odd tingling feeling over body, like when you get chill bumps but I don't get "the bumps" IBS Short-term and long-term memory problems, forgetfulness - really bad all the time Anxiety - comes and goes Slurred speech and "loss of word" (can't say a word I'm trying to) - comes and goes Increase in severity of symptoms with heat Body hurts when cold Swallowing problems - comes and goes Not sleeping well - most of the time Cold hands and feet - most of the time Fatigue - most of the time Ears ringing - almost all the time, maybe all the time now Headaches - most of the time, sometimes migraines Vertigo - comes and goes Feeling of floating when laying down - comes and goes Low body temp Feeling like I'm dreaming and just can't focus on what's going on - comes and goes Facial tingling - comes and goes Feel like I'm not emptying my bladder all the way sometimes Painful tailbone, can't sit and watch a whole move or drive very long When I look up my eye lid doesn't always move up - comes and goes Unable to tell hot from cold water with my feet I get optical migraines/painless migraines Burning pain in left hip since Dec. 27th 2007 and it's still going on "Black outs", My ears ring, eye site goes black, I can't tell if I'm still standing (I hang on to something), last about a minute. Numbness started about 4 years ago, don't remember the details but had some numbness that lasted a week around my mid area (had a lot of slurred speech this time and "loss of word") and hands going numb a lot. Dec. 28th 2007 when to the ER for left hand numbness, shortness of breath, major fatigue (I got winded and light headed just from talking). Jan. 1st 2008 when to the ER for numbness from the lower ribs and down (both legs), still having the above going on. The leg numbness stayed for 2 1/2 days than I was numb just around my mid area and than the next day my left leg was numb for 2 days than just numb on left hip for a day. Dec. 27th got a burning pain in left hip, hurts to even just touch the skin. Jan. 9th pain area has gotten bigger. Jan. 12th pain area is now most of the hip. Jan. 24th pain area has gotten a little smaller but still hurts the same. Feb. 2nd pain has gotten less but still hurts went touched and is still a burning pain.
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Hi, I'm Julie and mommy to 7 little kids (ages 4 to 11). . DX with Fibromyalgia, 1998 DX with MCS (Multiple Chemical Sensitivity), June 2008 DX with Food Allergies, wheat, sesame, fresh pineapple . |
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