..to everyone...it really does help to know you are not alone. Fibro is so mis-understood, and often undertreated. I sit here hurting, and awake, and I am thinking about all of you, and hope you are getting some much needed rest. Earlier in the night I just felt like I had had enough, already...but we manage to trudge on, somehow...

(((Mistiis))) you are up again!? I was sleeping.

Last night I crawled into bed with 2 heated blankets from the dryer. Lordy they felt good. I think it's about time I invest in an electric blanket or mattress pad, whichever! Cuddling into that heat feels good most especially on a chilly night. I don't like to sleep with the thermostat too high because then I get too hot and sweat. I prefer the heaviness of the blankies.

Do I need to bring my Trazadone over, hold your nose, and make you take some ((Mistiis))????

((Donna)) I hope you had a nice visit. And yes, fasten your seatbelt and keep on trucking.

I find the extreme fatigue debiltating as well.

I had a massage appointment today. Man I love going. But my
shoulder has been really bad, and its been in my muscles I guess.

And its so bad that I can't hardly move it most of the time. So I
just do what I can. But she did a lot of work trying to get the
soft tissue to release so that it wouldn't get worse.

And my legs were worse than they have been in a long time.
She did a great job as usual. But its going to take a while
to get my muscles to agree.

Donna

Hi Donna. Yes I love my massage therapy as well. I used to go once a month and now go every 3 weeks. She's a treasure. But I'm sure it would do me a lot more good to be able to go 1x a week, but I can't afford that.

That's interesting about your legs. Mine have been bothering me as well.

But do you guys hurt just to be touched? You can touch virtually anywhere on my body and it hurts. Even shaking hands with people. Urg.

Doody...I don't have the all over touch hurting. However, I do have several spots...my lower back, middle back, hips and butt area. When my husband rubs icy hot on me sometimes, I just don't know if it is worth it because of the pain of his touch. I really wish for all of our sakes they could come up with something better that would help.

I use to go get the massages done and they were wonderful. Since I am currently not working, and my husband is carrying all of the bills, etc., we really can't afford it plus I just don't want him to worry about anything more that he has to. My insurance company use to cover it, but now they only cover if all the proper codes, etc are entered on the claim form. The last time I tried, they sent it back almost a dozen times each time wanting more info than the last. It is just a pain. I may ask for a gift certificate for my b-day, christmas, etc. We'll see. Hugs to all.

Okay. I've had my doctor tell me SO many times that FMS and CMP are the same thing. NO they are not. Are they? heh They often co-exist. Why does my doctor keep insisting that they are not separate problems?

I'm convinced my primary problem is the chronic myofascia pain. That is why it hurts to touch me any place on my body, and I can sense the all over fascia pain all the time (if I let myself).

I think Starlanyl explains it really well. http://www.sover.net/~devstar/define.htm

I hate this stuff.

What's funny (well not really) is that when I'm being examined by a doctor for whatever reason...and they touch an area and say, "Does this hurt? Does that hurt? Does this hurt?" My answers are always, "Yes. Yes. Yes." no matter where they touch me, LOL!

Doody....sorry for the problems with your DR. Some DRs don't even believe that Firbro is real. They think it is in our heads. I have seen 2 that feel that way and I only went to them once. The link was awesome and explained it perfectly. I am so glad I don't have the all over touch problem. Just the areas are do have are a pain (no pun intended). I feel so bad for you. I sure wish there was something I could do....snap my fingers, etc to make it all go away.

Thanks Betty. No, my doctor totally believes in FM, there's no questioning that. But he keeps insisting that there is no difference between FM and MP. The more I read and hear, the more I believe that the myofascia is a larger problem for me than just the fibro. I can really tell when I have a fibro flare. The pain is ... larger? Deeper? Oh I can't explain it.I feel like everything under my skin hurts, LOL. But, maybe it is all encompassed with the fibro.

Where is wendy when we need her to answer something???

AH HAH!!!

Maybe she's talking about my doctor??? LOL

http://www.sover.net/~devstar/myopain.htm

Well, tomorrow at 9 am is my annual colonoscopy appointment for the ulcerative colitis.





Ugh. It's weird how when you know you can't have food you really, really want it.

Brought jello to work today. Oh joy. Get to drink glasses upon glasses of YUCK later and then have oh so much fun for hours on end.



Doc changed the prep on me this year and I am NOT a happy camper!!!!