Fibromyalgia and Chronic Fatigue Fibromyalgia syndrome is a widespread musculoskeletal pain and fatigue disorder which generally occurs in the muscles, ligaments, and tendons – the soft fibrous tissues in the body. This forum is for fibromyalgia and Chronic Fatigue Immune Deficiency Syndrome (CFS/CFIDS).


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Old 09-02-2008, 09:08 PM #21
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Just to let you know that my short term disability has been approved for 6 weeks. I just received the letter in the mail today. It should only take another 1 to 1.5 weeks to get my checks. One step at a time. At least they approved it. I was so worried that they would decline it. I'll be glad when it does come in, money is really tight right now. I went to Hobby Lobby today to get the stuff for my daughters Ag project and they already have their Christmas decorations out and up. I'm not ready for Christmas yet. Thank you all for comments and replies. I'll keep ya posted.
I hope all works out for you. I lost my job in April because of the Fibro. It took 2 months to get back on my feet. I am still not working and am trying for disability. But now I can walk and play. I need to nap alot and have to watch what I do. We are struggling financially, but I can't handle working anymore. My husband is trying to understand and I think the commercials are really helping. For me prayer, healthy eating and exercise is what helps. If you haven't already, try cutting out beef. For some reason that is a bad trigger for me and many others. Look for a support group in your area. They help alot. Good Luck!
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Old 09-03-2008, 12:07 AM #22
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Naja...sorry to here about you losing your job. I do believe if the doctors can't come up with something besides narcotics to keep the pain to tolerable levels, then I will lose my job. My company has bad enough. I think the short term disability is their last attempt to make it look like they are helping. If that happens, then I will go collect unemployment til we can figure out what the next step will be. One day, one bridge at a time. Also, I don't eat alot of red meat...still haven't found the trigger per say. I do have an idea that it is my Dr Pepper, bread, pasta, and anything else that produces simply sugars. Good luck to you. I've looked a little bit for a support group in my area, but have not found one yet. I will keep looking. Good Luck to you. to all of us.
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Old 09-03-2008, 08:15 AM #23
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Hello friends~ Warbs: so glad you got the disability approved for now. I hope you can get some of your energy back. I get so annoyed that FM is so misunderstood. I wouldn't wish the pain/fatigue etc etc on anyone.

Hello Naja and welcome to NeuroTalk. I'm sorry you are having to deal w/FM too.

It was a blow to me, the once most energetic person around, to have to leave a job I loved. But, it was literally taking me down in every way. The most debillitating thing, was the fact that I couldn't hack it anymore. My pride was hurt. But, alas, it was the best decision for me.

I too, am so glad there are commercials out there describing FM. I still maintain that you must live it to understand it. I also agree that they NEED to come up w/non narcotic pain meds. The Tramadol barely takes the edge off and does nothing for my leg spasms/cramps. Oh, but it's great at constipating me!!! *sorry* ARGHHHH! I find myself grabbing for the bottle and then saying Nah, what's the use???

The narco's are just too much for me. I don't like the side effects from them.

Take care everyone and I really think in "sharing" what we go through, we are helping others and each other.

sending hugs, but "gentle" ones.....
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Old 09-03-2008, 09:40 PM #24
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Big thing is I'm just waiting on Aenta to approve my claim. I called today and the customer service person told me that the claim had been approved by my company but not them. They are in the processing of reviewing and then going to make the determination if they are going to give me benefits or not. I had this happen in Feb when I had my second surgery in 18months for scar tissue removal. The surgeon @ Emory put me out for 8 weeks but Aetna would only approve it for 6 weeks even though this was the second time in 18 months having the same surgery. I just don't understand how or why the insurance companies are allowed to override what the doctors say. Don't get me wrong, I have nothing against nurses. However, they have a paid nurse on staff to review all claims that come in. Seems wrong to me. I also realize that insurance companies are in it to make money. That is also wrong when it comes at the health expense of a person and their family. I will let you know how things are progressing. Thanks for all your thoughts.
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Old 09-13-2008, 07:10 PM #25
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I too, am so glad there are commercials out there describing FM. I still maintain that you must live it to understand it. ..
Oh, me too DM. Finally, prominent commercials that address Fibro. Never thought I'd see that.

Sometimes I wonder how I'm still working but I just have no choice. In the mornings, especially the last couple months, I've been having a hard time at work most especially in the mornings. I walk around like a really old woman in pain. LOL I am, what am I saying. I have trouble getting up and down from my desk all the time. And people look at me and ask, oh my goodness, what's wrong. Now I actually say, it's my fibro, not doin so good.

((Naja)) it's nice to meet you. I'm sorry for what you've been through and not being able to work anymore. It'll be okay.

((Warble)) I'm sorry to hear about the delay! Geesh, get with it people.

Oh, and Tramadol does nothing for me. I have a lot of trouble with with those types of drugsd because of my ulcerative colitis. I can barely take Advil. For whatever reason, they make the UC start to flare like crazy, and truth be told...I've been having a lot of flaring problems this past year. My annual colonoscopy is next month, Oh goody.

Hugs and love. Time for me to soak in a hot epsom salt bath.
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Old 09-13-2008, 07:13 PM #26
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Come to th8ink of it, I've had a lot of my bodily problems going wrong lately. Even my migraines have come to the fore. I just wonder if the change in the weather has had something to do with it, I dunno. I dread any flareup of migraines or the UC. Too debilitating.

Anyone else really affected by the weather? I didn't think I was but maybe I am. But then, I've been more stressed than usual lately as well.

Guess it's time for me to really work on getting myself 're'-centered and get back to regular meditation.
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Old 09-13-2008, 08:02 PM #27
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Doody, the weather does affect me a lot. I notice it more and more.

All...still waiting on the insurance company to approve my short term disability. At this rate, it will be time to extend it and the fight starts all over again. I just wish there was some miracle drug that would help us all. I've tried all natural and everything. I am taking all natural supplements for hair, nails and skin because my hair is coming out and breaking and just looks awfully. My nails and skin are just as bad. My husband has me taking B12 for energy along with all of the other medicines i'm on. I take roxicodone (15 to 30 mg) every 4 to 6 hours for pain plus cymbalta, zoloft, sleeping medicine, GERD medicine and thyroid medicine and they still barely help. For some time now, I have been having severe muscle weakness (have fallen down stairs 3 different times cause me legs gave out) and I shake off and on all day long. Been going to more DRs to figure out what is causing the extra. Just what I needed on top of all the pain.

Good Luck to all and keep in touch.
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Old 09-23-2008, 09:53 PM #28
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Well...wanted to give ya'll an update. Aetna disapproved my claim stating the information submitted by the neurologist does not back up what my primary doc is saying. I tried to explain to the guy on the phone that there are no blood tests out there that can nail down the diagnosis. It is a process of elimination based on symptoms and blood test coming back normal. He said on my paperwork it states that I have low throid, but the test came back normal. I explained to him that I take thryoid medicine everyday and that is why it came back normal. I asked if he read the complete paperwork. He said yes. I told him the medication is listed on the paperwork. No answer then. He tried to tell me he understands what I am going through. At that point I kinda lost it. I told him he does not understand the pain, etc. as well as watching my family have to watch me suffer everyday, the things I use to enjoy doing I can't anymore, etc. No answer again. He just stated I would be receiving my denial letter in a few days. My husband and I are going to call a few attorneys tomorrow to find out what our options are (if we have any) and see what we can do. Eventually, this would have went into long term disability. So now thanks to Aetna, we may lose our home and everything else. I'll let you know what the attorney's say. Thanks all for listening.
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Old 09-26-2008, 12:04 AM #29
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Had to contact an attorney. Attorney's office said I have a case. So we are going to go after them. I've also decided to try for Social Security. Since I can't work full or even part time them I need to get something coming in so we don't lose our home and everything else. thanks to all for your thoughts. Good luck all my fibro friends.
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Old 09-27-2008, 11:33 AM #30
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((Betty)) So sorry to hear about this, darn it. I would have been infurated. Keep us posted on what happens of course. I hope the attorney works fast and gets this taken care of.
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