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Fibromyalgia and Chronic Fatigue Fibromyalgia syndrome is a widespread musculoskeletal pain and fatigue disorder which generally occurs in the muscles, ligaments, and tendons – the soft fibrous tissues in the body. This forum is for fibromyalgia and Chronic Fatigue Immune Deficiency Syndrome (CFS/CFIDS). |
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#21 | ||
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"Thanks for this!" says: | Doody (09-13-2008), warbelsnap (09-03-2008) |
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#22 | |||
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Naja...sorry to here about you losing your job. I do believe if the doctors can't come up with something besides narcotics to keep the pain to tolerable levels, then I will lose my job. My company has bad enough. I think the short term disability is their last attempt to make it look like they are helping. If that happens, then I will go collect unemployment til we can figure out what the next step will be. One day, one bridge at a time. Also, I don't eat alot of red meat...still haven't found the trigger per say. I do have an idea that it is my Dr Pepper, bread, pasta, and anything else that produces simply sugars. Good luck to you. I've looked a little bit for a support group in my area, but have not found one yet. I will keep looking. Good Luck to you.
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Betty Everything has beauty but not everyone sees it . |
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"Thanks for this!" says: | Doody (09-13-2008) |
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#23 | |||
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Hello friends~ Warbs: so glad you got the disability approved for now. I hope you can get some of your energy back. I get so annoyed that FM is so misunderstood. I wouldn't wish the pain/fatigue etc etc on anyone.
Hello Naja and welcome to NeuroTalk. I'm sorry you are having to deal w/FM too. It was a blow to me, the once most energetic person around, to have to leave a job I loved. But, it was literally taking me down in every way. The most debillitating thing, was the fact that I couldn't hack it anymore. My pride was hurt. But, alas, it was the best decision for me. I too, am so glad there are commercials out there describing FM. I still maintain that you must live it to understand it. I also agree that they NEED to come up w/non narcotic pain meds. The Tramadol barely takes the edge off and does nothing for my leg spasms/cramps. Oh, but it's great at constipating me!!! *sorry* ARGHHHH! I find myself grabbing for the bottle and then saying Nah, what's the use??? The narco's are just too much for me. I don't like the side effects from them. Take care everyone and I really think in "sharing" what we go through, we are helping others and each other. sending hugs, but "gentle" ones.....
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DM . |
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"Thanks for this!" says: | Doody (09-13-2008), warbelsnap (09-03-2008) |
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#24 | |||
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Big thing is I'm just waiting on Aenta to approve my claim. I called today and the customer service person told me that the claim had been approved by my company but not them.
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Betty Everything has beauty but not everyone sees it . |
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"Thanks for this!" says: | Doody (09-13-2008) |
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#25 | |||
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Sometimes I wonder how I'm still working but I just have no choice. In the mornings, especially the last couple months, I've been having a hard time at work most especially in the mornings. I walk around like a really old woman in pain. LOL I am, what am I saying. I have trouble getting up and down from my desk all the time. And people look at me and ask, oh my goodness, what's wrong. Now I actually say, it's my fibro, not doin so good. ((Naja)) it's nice to meet you. I'm sorry for what you've been through and not being able to work anymore. It'll be okay. ((Warble)) I'm sorry to hear about the delay! Geesh, get with it people. Oh, and Tramadol does nothing for me. I have a lot of trouble with with those types of drugsd because of my ulcerative colitis. I can barely take Advil. For whatever reason, they make the UC start to flare like crazy, and truth be told...I've been having a lot of flaring problems this past year. My annual colonoscopy is next month, Oh goody. ![]() Hugs and love. Time for me to soak in a hot epsom salt bath.
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. . . . . . Bruna - rescued from a Missouri puppy mill |
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"Thanks for this!" says: | warbelsnap (09-13-2008) |
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#26 | |||
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Come to th8ink of it, I've had a lot of my bodily problems going wrong lately. Even my migraines have come to the fore. I just wonder if the change in the weather has had something to do with it, I dunno. I dread any flareup of migraines or the UC. Too debilitating.
Anyone else really affected by the weather? I didn't think I was but maybe I am. But then, I've been more stressed than usual lately as well. Guess it's time for me to really work on getting myself 're'-centered and get back to regular meditation.
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. . . . . . Bruna - rescued from a Missouri puppy mill |
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"Thanks for this!" says: | warbelsnap (09-13-2008) |
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#27 | |||
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Doody, the weather does affect me a lot. I notice it more and more.
All...still waiting on the insurance company to approve my short term disability. At this rate, it will be time to extend it and the fight starts all over again. I just wish there was some miracle drug that would help us all. I've tried all natural and everything. I am taking all natural supplements for hair, nails and skin because my hair is coming out and breaking and just looks awfully. My nails and skin are just as bad. My husband has me taking B12 for energy along with all of the other medicines i'm on. I take roxicodone (15 to 30 mg) every 4 to 6 hours for pain plus cymbalta, zoloft, sleeping medicine, GERD medicine and thyroid medicine and they still barely help. For some time now, I have been having severe muscle weakness (have fallen down stairs 3 different times cause me legs gave out) and I shake off and on all day long. Been going to more DRs to figure out what is causing the extra. Just what I needed on top of all the pain. Good Luck to all and keep in touch.
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Betty Everything has beauty but not everyone sees it . |
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"Thanks for this!" says: | Doody (09-27-2008) |
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#28 | |||
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Well...wanted to give ya'll an update. Aetna disapproved my claim stating the information submitted by the neurologist does not back up what my primary doc is saying. I tried to explain to the guy on the phone that there are no blood tests out there that can nail down the diagnosis. It is a process of elimination based on symptoms and blood test coming back normal. He said on my paperwork it states that I have low throid, but the test came back normal. I explained to him that I take thryoid medicine everyday and that is why it came back normal. I asked if he read the complete paperwork. He said yes. I told him the medication is listed on the paperwork. No answer then. He tried to tell me he understands what I am going through. At that point I kinda lost it. I told him he does not understand the pain, etc. as well as watching my family have to watch me suffer everyday, the things I use to enjoy doing I can't anymore, etc. No answer again. He just stated I would be receiving my denial letter in a few days. My husband and I are going to call a few attorneys tomorrow to find out what our options are (if we have any) and see what we can do. Eventually, this would have went into long term disability. So now thanks to Aetna, we may lose our home and everything else. I'll let you know what the attorney's say. Thanks all for listening.
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Betty Everything has beauty but not everyone sees it . |
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"Thanks for this!" says: | Doody (09-27-2008) |
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#29 | |||
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Had to contact an attorney. Attorney's office said I have a case. So we are going to go after them. I've also decided to try for Social Security. Since I can't work full or even part time them I need to get something coming in so we don't lose our home and everything else. thanks to all for your thoughts. Good luck all my fibro friends.
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Betty Everything has beauty but not everyone sees it . |
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#30 | |||
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Grand Magnate
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((Betty)) So sorry to hear about this, darn it. I would have been infurated. Keep us posted on what happens of course. I hope the attorney works fast and gets this taken care of.
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. . . . . . Bruna - rescued from a Missouri puppy mill |
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"Thanks for this!" says: | warbelsnap (09-27-2008) |
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