Fibromyalgia and Chronic Fatigue Fibromyalgia syndrome is a widespread musculoskeletal pain and fatigue disorder which generally occurs in the muscles, ligaments, and tendons – the soft fibrous tissues in the body. This forum is for fibromyalgia and Chronic Fatigue Immune Deficiency Syndrome (CFS/CFIDS).

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Old 09-13-2008, 07:13 PM #1
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Come to th8ink of it, I've had a lot of my bodily problems going wrong lately. Even my migraines have come to the fore. I just wonder if the change in the weather has had something to do with it, I dunno. I dread any flareup of migraines or the UC. Too debilitating.

Anyone else really affected by the weather? I didn't think I was but maybe I am. But then, I've been more stressed than usual lately as well.

Guess it's time for me to really work on getting myself 're'-centered and get back to regular meditation.
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Old 09-13-2008, 08:02 PM #2
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Doody, the weather does affect me a lot. I notice it more and more.

All...still waiting on the insurance company to approve my short term disability. At this rate, it will be time to extend it and the fight starts all over again. I just wish there was some miracle drug that would help us all. I've tried all natural and everything. I am taking all natural supplements for hair, nails and skin because my hair is coming out and breaking and just looks awfully. My nails and skin are just as bad. My husband has me taking B12 for energy along with all of the other medicines i'm on. I take roxicodone (15 to 30 mg) every 4 to 6 hours for pain plus cymbalta, zoloft, sleeping medicine, GERD medicine and thyroid medicine and they still barely help. For some time now, I have been having severe muscle weakness (have fallen down stairs 3 different times cause me legs gave out) and I shake off and on all day long. Been going to more DRs to figure out what is causing the extra. Just what I needed on top of all the pain.

Good Luck to all and keep in touch.
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Old 09-23-2008, 09:53 PM #3
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Well...wanted to give ya'll an update. Aetna disapproved my claim stating the information submitted by the neurologist does not back up what my primary doc is saying. I tried to explain to the guy on the phone that there are no blood tests out there that can nail down the diagnosis. It is a process of elimination based on symptoms and blood test coming back normal. He said on my paperwork it states that I have low throid, but the test came back normal. I explained to him that I take thryoid medicine everyday and that is why it came back normal. I asked if he read the complete paperwork. He said yes. I told him the medication is listed on the paperwork. No answer then. He tried to tell me he understands what I am going through. At that point I kinda lost it. I told him he does not understand the pain, etc. as well as watching my family have to watch me suffer everyday, the things I use to enjoy doing I can't anymore, etc. No answer again. He just stated I would be receiving my denial letter in a few days. My husband and I are going to call a few attorneys tomorrow to find out what our options are (if we have any) and see what we can do. Eventually, this would have went into long term disability. So now thanks to Aetna, we may lose our home and everything else. I'll let you know what the attorney's say. Thanks all for listening.
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Old 09-26-2008, 12:04 AM #4
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Had to contact an attorney. Attorney's office said I have a case. So we are going to go after them. I've also decided to try for Social Security. Since I can't work full or even part time them I need to get something coming in so we don't lose our home and everything else. thanks to all for your thoughts. Good luck all my fibro friends.
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Old 09-27-2008, 11:33 AM #5
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((Betty)) So sorry to hear about this, darn it. I would have been infurated. Keep us posted on what happens of course. I hope the attorney works fast and gets this taken care of.
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Old 09-27-2008, 09:59 PM #6
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Sorry to read about this. Also wanting you to keep us updated.

Donna
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Old 10-06-2008, 11:02 PM #7
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Hey all. Still waiting on Aetna. We have faxed over 50 more pages including a clarification letter from the neuro stating they found nothing wrong and test were normal neurologically only. I sure hope it works. However, they have had all of the info since last Wednesday. I know my case is not the only one. However, as long as it has been hanging around, you'd figure they would want to get mine out of the way the quickest. That is what I would do. It is the most reasonably and logically thing. However, reasonably and logically do not exist in insurance companies vocab or standard practice. Same as common sense. Maybe if they would use a little of all the above, then insurance companies would look so bad. They might actually look like they care. Thanks all for the thoughts. I'll keep you updated.
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