FAQ/Help |
Calendar |
Search |
Today's Posts |
![]() |
|
Fibromyalgia and Chronic Fatigue Fibromyalgia syndrome is a widespread musculoskeletal pain and fatigue disorder which generally occurs in the muscles, ligaments, and tendons – the soft fibrous tissues in the body. This forum is for fibromyalgia and Chronic Fatigue Immune Deficiency Syndrome (CFS/CFIDS). |
|
Thread Tools | Display Modes |
![]() |
#1 | |||
|
||||
Magnate
|
I am going to post this because I am alarmed at the number of people 'diagnosed' with Fibro. If I endure wrath, fine. I did my part. First, let me say, I am a retired medical professional. Let me also say, I had the diagnosis of Fibro.
Then several things happened. I got a case of Lyme Disease and it was caught acutely, undertreated and shoved under the rug. End of this issue. However, remember, I had 'fibro' first. Then I had a minor salivary gland biopsy done, on my own, by an oral surgeon and Mayo read it and it was consistent with Sjogren's. Then many years later, I had an autonomic nervous system battery run and flunked it. That lead to skin biopsies to measure nerve fiber density. That came back abnormal, leading to a diagnosis of small fiber neuropathy, idiopathic. High ANA here and there. Low C4 once. Abnormal PET scan, abnormal CT scan. A few bone fractures and torn ligaments, abnormal EGD and manometry. Then recently, an abnormal CD4+/CD8+ ratio, with excessive T helper cells. This will likely yield some more info, which could be lymphoma or sarcoidosis. Until a lot of tests are done, usually over a period of years, a diagnosis of fibro is incomplete. The trigger points are insertions of ligaments into bone....they are sore in a lot of people, especially in people with seronegative spondyloarthropathies. Please for your own health, research, research, research and ask for tests that appear to be indicated. I believe you have illness and pain and that this illness and pain could possibly one of a hundred or more entities that simply were NOT looked for due to laziness, cheapness of the system, or some other bias. |
|||
![]() |
![]() |
|
|
![]() |
||||
Thread | Forum | |||
Secondary Fibro? Fibro-like Symptoms? | Fibromyalgia and Chronic Fatigue | |||
New Med for Fibro? | Fibromyalgia and Chronic Fatigue | |||
Fibro vs. CFS | Fibromyalgia and Chronic Fatigue | |||
RLS and Fibro | Fibromyalgia and Chronic Fatigue | |||
I am new to fibro/CFS | Fibromyalgia and Chronic Fatigue |