Fibromyalgia and Chronic Fatigue Fibromyalgia syndrome is a widespread musculoskeletal pain and fatigue disorder which generally occurs in the muscles, ligaments, and tendons – the soft fibrous tissues in the body. This forum is for fibromyalgia and Chronic Fatigue Immune Deficiency Syndrome (CFS/CFIDS).


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Old 01-31-2009, 08:32 PM #1
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cyclelops cyclelops is offline
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cyclelops cyclelops is offline
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Join Date: May 2007
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15 yr Member
Default When is it fibro?

I am going to post this because I am alarmed at the number of people 'diagnosed' with Fibro. If I endure wrath, fine. I did my part. First, let me say, I am a retired medical professional. Let me also say, I had the diagnosis of Fibro.

Then several things happened.

I got a case of Lyme Disease and it was caught acutely, undertreated and shoved under the rug. End of this issue. However, remember, I had 'fibro' first.

Then I had a minor salivary gland biopsy done, on my own, by an oral surgeon and Mayo read it and it was consistent with Sjogren's.

Then many years later, I had an autonomic nervous system battery run and flunked it. That lead to skin biopsies to measure nerve fiber density. That came back abnormal, leading to a diagnosis of small fiber neuropathy, idiopathic.

High ANA here and there. Low C4 once. Abnormal PET scan, abnormal CT scan. A few bone fractures and torn ligaments, abnormal EGD and manometry.

Then recently, an abnormal CD4+/CD8+ ratio, with excessive T helper cells. This will likely yield some more info, which could be lymphoma or sarcoidosis.

Until a lot of tests are done, usually over a period of years, a diagnosis of fibro is incomplete. The trigger points are insertions of ligaments into bone....they are sore in a lot of people, especially in people with seronegative spondyloarthropathies.

Please for your own health, research, research, research and ask for tests that appear to be indicated.

I believe you have illness and pain and that this illness and pain could possibly one of a hundred or more entities that simply were NOT looked for due to laziness, cheapness of the system, or some other bias.
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